update on Ellis x

Comment by Freya's Mum on March 28, 2009 at 17:27

Glad Ellis is doing well, please can you tell me more about the fudo op, Freya's dr has suggested its the next step for her, she is 2 1/2 avarage weight on above max meds and in constent pain. What are the pro/cons of the op??? How long is recovery??? Is there any further complications?? She has had previous abdo surgery which has left a large anount of scare tissue near her unbillicals (a lump about the size of a 10p) so she may not be able to have a lapsocopy, what did Ellis have and how bad was the scaring??

Many Thanks

Karenxx

Comment by DONNA CHURCHES on April 2, 2009 at 13:31

Hi Karen, I cannot believe your daughter is 2 and a half, poor little thing, does she have a food aversion? Ellis did but since the op he gradually got better. I would definately reccomend the op, the pros for Ellis have been, his pain automatically stopped he has been a different child since the op, so pain free and happy. Ellis now has a gastronamy button placed in his tummy because after this op your child may have 'gas bloat' this is because the wrap will be tight in order to stop the acid coming up, so you can wind them through the gastronamy button, we also feed ellis through this because he was underweight so we are now catching up with that, as far as im aware as soon as his weight has caught up he will have the gastronamy removed. Ellis has a scar which is a long line approx 10cm long, he had the op in Sept just gone and the scar had faded an awful lot already, I was speaking to a lady the other day whose daughter had the same op 21years ago! I was asking her about the scar and she said that her daughters scar is hardly visible now! Obvioulsey the op itself is a very frightening experience for the parents, I was a bloody wreck for a month before, but I would do it all over again because this op really has given my son a happy pain free life. Ellis had the op on a tuesday and was discharged the following Sat, 2 days after the op he was almost back to himself it was amazing what quick recovery he had. Sorry for going on but I wanted to give you as much info as I could, if you need anymore advice or anything don't hesitate to ask. I really hope everything goes good for you,
Donna x

Comment by DONNA CHURCHES on April 2, 2009 at 13:32

oh forgot to ask what is a lapsocopy? x

Comment by Freya's Mum on April 2, 2009 at 19:36

Thanks Donna, You have really put my mind at rest. Freya dosen't have a food adversion, quite the opposite, she loves food, her pain is at its worst when her stomarch is empty!!! A lapsocopy is when they do the surgery by just making 3 small cuts. But I take it Ellis didnt have that either, can I ask where his scar is??? Freya has a scar over the top of her belly button, from previous surgery, this is where she has nasty scar tissue and I worry about them having to cut through that again. The gastronamy button sounds like fun!!! How is Ellis with this??

One last question does Ellis still take meds??

Thanks

Karenx

Comment by DONNA CHURCHES on April 12, 2009 at 8:50

Hi Karen, Ellis's scar starts at the top of his belly button and goes in a straight line upwards. Ellis has been great with his button, thank god!!! We have a community nurse who should come and show us how to change it for a new one, she is terrible she has watched me do it once ( which I wasn't at all confident with), then she commented on how it would have been better if my husband was here because he would just get on with it!!!!!!!!! It needs changing every 3 months and she's not coming next time she said right you are on your own now!!!1 Great support! Ellis doesnt take any meds now, straiight after the op he was alternating calpol and nurofen for two weeks but since then he is med free!
Hope all is going well for you and Freya, thinking of you,
Donna x

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