Book update and hello to a friend........

Redoing the book.......

Well, I have all the info I need, the book is being updated as I write here and an amended version will be posted soon.

Ravi, if you make it onto here, check out all the parents who are having similar experiences to the ones I had.
They have no medical support, only each other and shared experience, most are confronted with medical ignorance of some sort or other. Read the stories, there are many who are remarkably similar to mine.

The messaage to take away from this site is clear, the medical team can make a difference, they make life bearable or make life incredibly hard. Just make sure the guys coming out of the sausage factory at the other end have the same compassion and understanding without being judgemental as you have.

Catch up soon.

T