8 months of hell!

Comment by sonya on November 8, 2011 at 21:40

p.s, my LO is also a bit behind with his weight gain...he was 6lb 8 born...now a couple of oz over 18lb and small for his age. he isnt sitting yet either...but i guess they all different so not too worried about this. my first son was crawling by now, lol! thats why its no good to compare :)

Comment by Rachael Andrews on January 12, 2012 at 20:54

Hi Sonya, I know that's its been a while since you added this post - I hope that things have improved recently. I really feel for you. I wanted to add a comment because it sounds like we have had similar experiences. I have a 3 year old girl who did not suffer from reflux and a son who is now 16 months; he still suffers from silent reflux! But please be reassured it does get easier, however we have found that there is definately no quick fix. We finally got to see the paed when our boy was 8 months old. The paed said that I should have come to him months ago!! (at which point I started crying because I had been asking for a referral since my baby was 2 months old!!) but it was a relief that someone was finally taking me seriously. We too, had 8 months of absolute hell - no sleep, self-doubt, arguments within the family etc, etc. The paed gave us Omeprazole (Losec Mups) and within 2 days our son ate his first tiny bowl of food (we had been trying to wean him for months!) He also started to sleep better. We still to this day have our bad days and weeks but I just wanted to give some advice; - trust your instincts - you know your baby best; if anyone offers help (grandparents etc) take it!, do whatever it takes to keep yourself sane and don't listen to people who try to make you feel like it's because you're a bad parent or it's all in your head..... I am an ex-teacher trained the early years and currently work as a child psychologist but still people thought they knew better! Good luck and let me know how it's going if you ever get to read this :)

Comment by sonya on January 12, 2012 at 22:01

Thank you Rachael. We actually had an appointment with the paed today and they have said we should stay on neocate and losec for another four months...( since this post we finally getting somewhere and after trial and error with a few different combinations of meds and dietary stuff, this is where we ended up seeing improvement) and touch wood, Jamie has been settled for the last four days! We have waited ten months to get to this point and to have had four days of settled, normal baby-ness is amazing! He has been on the meds and milk since before Christmas, but it's only now that we have had results, and he suddenly has started to common, he had struggled developmentally and I swear that it was cos he was in too much pain to do anything. We have finally managed to get himintohis own room this week and we are beginning to get him into a much awaited routine, as he has never been pain free enough in the day to sleep properly. This means we are getting a bit of a much needed break when he has his naps! I'm not going to fool myself into counting my chickens, I know that there will be plenty of ups and downs, but it's just so nice to have had a good few ups in a row :) does your little one still suffer with reflux? Thanks for your reply, it's good to chat with people who you can relate to x

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