LittleRefluxers

hi all...I've just come across littleRefluxers & i'm amazed at the amount of children that suffer with this problem!!
I'm a mother of two, my three old daughter (4 in Dec) manage to escape the clutches of reflux (thank-god!) however my 8mth old son was not so lucky!!! Here's his story.......
He was born just over three weeks prem, horrid labour (when are they ever nice!) using suction cup. He weighed a healthy 7lbs13Oz's, i was unable to breast feed so he was fed on SMA gold. 1st couple of days no prob then he started to projectile vomited after every feed, my hv suggested changing his milk to aptamil we did..no change. she then suggested weaning him (he was only just 4 mths) & prescribed gaviscon. This just made his sick thicker!
His weight gain slowed, at most gaining 1or 2 Oz's each mth, they referred us to the paediatrician & dietrision who suggested changing diet/milk. First we tryed lactose free..no change, then we tryed dairy free..no change. we put him on cow& gate 6mths plus formula & gave him the same dinners that we were having, he was prescribed Gaviscon, domperidone & ranitidine, these have seemed to calm his sickness but he still has days where he does not seem to keep anything down! Now my little man just seems to be going from bad to worse...he still has the occasional bouts of sickness, he's developed eczema all over his body & face which he is constantly scratching & waking in the night screaming in pain ( night-terrors) he has got a constantly suffering with chest infections, coughing/wheezing & although he's not lost any weight he's not gaining any either!! My paediatrician has been little help, we've only seen him twice & my appoints keep getting pushed back!!! In desparation we went to our GP who has written a letter to the paediatrician to get the appoint moved forward as she believes my son is suffering from allergy related eczema..to milk protein? shes prescribed nutramigen formula so we are now giving it a go, ill let you all know how he gets on...fingers crossed!!
(still waiting for an appointment from the paediatrcian)
do you know it really helps to write things down...thanx for listening ;o)

Views: 0

Comment by keely on October 17, 2008 at 15:35
thankyou so much for your advise it really gave me a "how dare they!" kinder feeling so i got straight on the phone to my gp...she;s gonna give the hospital a ring & push for the pead appoint (bout time!) i could'nt tell you what kind of pead we see?? we just go to the hospital?? what does GI stand for?
my son will not touch the nutramigen..can't really blame him it tasts like sour milk! im going to see my gp monday so neocate will be 1 of the things on top of my list! thanks again not just for the advise but just for being someone that understands
keely x
Comment by Francesca on October 17, 2008 at 16:23
Hi
i remember my pediatrician saying that eczma is always an intolerance to milk protein and NOT to lactose so you definitely want the NEOCATE
with NUTRAMIGEN and nEOCATE tehty are all pretty foul but you can get flavourings for them. Try fruit purees or ask your GP for some special SHA flavouring.
Comment by keely on October 24, 2008 at 11:22
hi
logan's now on NEOCATE & the taste doesn't seem to bother him (think he's just glad to have his milk back!)
the eczema has calmed loads more dry skin patches that red & raw....
he's not throwing up as much & seems a lot happier!!!
They referred us to the community pead as well as the hospital so now we've gone from no appointment to one on the 4th nov (community) & one on the 27th nov (hospital) hopefully now things will start to look up, fingers crossed he'll start to put some weight on!!!
thanks again it's amazing how quick things got done when i was armed with good information!
ill keep you posted..wishing you & your children all the best!!!
a very happy Keely xxx

Add a Comment

You need to be a member of LittleRefluxers to add comments!

Join LittleRefluxers

Cot Wedge Guide

Chat to the Founders of Little Refluxers!!

Wedges and Positioners

Photos

Loading…
  • Add Photos
  • View All

Members

Badge

Loading…

© 2012   Created by Admin.   Powered by

Badges  |  Report an Issue  |  Terms of Service