LittleRefluxers

Libby Ryan-Davies

Introduction - Anyone with similar experiences?

Hi my name is Libby and I am Mum to Max aged 4 and Lukas aged 8 months. Lukas was born in December last year at 25 weeks gestation weighing 840 grammes (1 pound 13 ounces). He finally came home to us in March 2008. Initially all was as well as could be expected. I managed to breastfeed and so the initial weeks were exclusively breastfeeding. After a couple of months the tiredness of constant expressing etc. caught up and I decided to start him on some formula milk in tandem with the last of the frozen breast milk. The first few weeks were ok, but as soon as we switched completely to formula milk the problems started. (Lukas had had mild reflux up to this point and was on ranitadine.) He became very sicky - whole feeds coming back within a few minutes and very colicy - life became continous feed - vomit - feed - screaming etc. and at same time became very chesty / wheezy. Went back and fore to GP who said was colic and asthma - didn't get anywhere. Finally saw paediatrician who did x-ray and found Lukas has aspirated milk seriously and he was immediately admitted and put on NG feeding to prevent further reflux and give him a rest while anti-biotics etc kicked in. 2 weeks later we were still on the ward - he's now on domperidone, omiprazole and changed milk to mutramigen 2. Only problem now being he's developed an aversion and won't go back to bottle feeding. Finally they allow us to bring him home on the NG tube as with a 4 year old at home I was going demented. We're 4 weeks on now, still not getting anywhere consistently with getting him feeding. Sometimes he will take bottle asleep, sometimes will take an ounce / 2 ounces with eyes open but no pattern to it. Just seen a private speech and lang therapist who has given programme to try cups and spoons (weaning hasn't been successful - he's still quite small cause of prematurity). Tried experiment with rice milk on spoon yesterday and seemed to take it compared to nutramigen (disgusting stuff!). Can anybody help with their experiences of aversion / taste of nutramigen and problems / weaning and is there a test to determine if baby does have cow's milk protein allergy and is it easy to get as Lukas doesn't seem to have any symptoms of this but Paediatrician says there is link with making reflux worse. Please help. I am 8 months tired now with all of this. Anyone got anything to say about Cow and Gate comfort?

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2princesses mum Comment by 2princesses mum on January 1, 2009 at 11:01pm
just wanted to say hi.i was drawn to you by that pic of your tiny baby. my rach was born at 35 weeks but at about 6 weeks was diagnossed with reflux she was put on gaviscon which was fab at first then t was increased and she is now on ranitadine too and so far its been fab. she now sleeps 8 to 12 hrs at night and is hardly sick any more. but she is still small and only takes 4oz. people look at me like im daft when i say she is 3 months old. im lucky she takes her bottles after a bit of a fight tho

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