"Thank you Rachael. We actually had an appointment with the paed today and they have said we should stay on neocate and losec for another four months...( since this post we finally getting somewhere and after trial and error with a few different…"
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sonya
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Refluxing again :(
9 Replies
Well, Jamie was booked in for his ph study next week, we had to stop all meds from Tuesday. By yesterday he was refluxing so much that I cancelled appointment nd have started back his meds again. It…Continue
Started this discussion. Last reply by Sara B Dec 30, 2011.
me again!
1 Reply
hiya, jamie been on neocate for nearly 3 weeks now. in that space of time he has had worms, cut another tooth and now has a viral infection! so his general screaming fits havent changed at all, but…Continue
Started this discussion. Last reply by Jenny Rawling Dec 20, 2011.
update on jamie for anyone interested! lol
2 Replies
Hiya..well we went back to paed today, the stool sample showed up negative but he gave us script for neocate and made us an appt with dietician as he said that there is still a chance he has…Continue
Started this discussion. Last reply by Beverley Dec 2, 2011.
can liquid omeprazole be mixed with juice?
2 Replies
Just wanted to check cos some of you have said it tastes nasty and im panicking now incase jamie wont take it? there are no instructions with it, so i wasnt sure.Continue
Started this discussion. Last reply by sonya Nov 25, 2011.
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Rachael Andrews commented on sonya's blog post 8 months of hell!"Hi Sonya, I know that's its been a while since you added this post - I hope that things have improved recently. I really feel for you. I wanted to add a comment because it sounds like we have had similar experiences. I have a 3 year…"
sonya replied to sonya's discussion Refluxing again :("Thanks Sarah, that's an idea and something to put to the ped on 12 th x"
sonya replied to sonya's discussion Refluxing again :("No it's ok Jen, I don't think that. But I did find the cancer comment a little manipulative by them, as they also provide methadone to drug addicts too, but hat doesnt have the same point! The ped referred us for ph, and we won't be…"
Sarah replied to sonya's discussion Refluxing again :("Hi Sonya.Speak to your consultant and ask for them to do an impedance test ON medication to evaluate the extent of the refluxing.
The impedance test measures pressure (and is usually done in conjunction with a pH probe anyway) and can be done…"
Gillian D replied to sonya's discussion Refluxing again :("They can test for blood etc in stool samples which might point to CMPI but it doesn't prove it or disprove it either way. "
Jenny Rawling replied to sonya's discussion Refluxing again :("Can I just throw a couple of spanners into the mix? I'm not in any way saying you are wrong, just some things you may not have considered.
When you stop or reduce omeprazole you get a big rebound in acid levels. Basically how it works is it…"
Gillian D replied to sonya's discussion Refluxing again :("There isn't a test for CMPI. The only way it can be proved is if dairy is removed and the symptoms go away.
If a dr is attempting to tell you they've somehow tested for CMPI and it's negative that's rubbish. If that's…"
sonya replied to sonya's discussion Refluxing again :("Thanks Sarah. I think there is a struggle as there is no actual proof, except symptoms, of cmpi. The stool test showed neg but ped still thinks he has it as some babies don't show up in tests. The neocate is defo helping in comb with the omep.…"
sonya posted a discussionRefluxing again :(
Well, Jamie was booked in for his ph study next week, we had to stop all meds from Tuesday. By yesterday he was refluxing so much that I cancelled appointment nd have started back his meds again. It was like going back in time. E is still really bad today though, surely only two mornings of missed omep shouldn't have made this much difference? Got a fight on my hands for the neocate too, doctors said they can't afford pay nearl three thou a year on his milk when there are cancer drugs to buy,…See More
Jenny Rawling replied to sonya's discussion me again!"HI Sonya. The other thing to try adding is nesquik powder to flavour the neocate. Alternatively, can you get it into him in foods? There are recipes on the neocate website (or posted here…"
sonya replied to Sally Clay's discussion Baby now on neocate and still getting worse!"i read about a baby having trouble with neocate after their injections, and that there is a possibility that there could have been some sort of temporary reaction. dont know if your LO has had any jabs round the same time? Sorry, that prob doesnt…"
sonya posted a discussionme again!
hiya, jamie been on neocate for nearly 3 weeks now. in that space of time he has had worms, cut another tooth and now has a viral infection! so his general screaming fits havent changed at all, but the refluxing...head shaking, back arching, acid etc seem to have improved. only problem is he took to it at first and drank it, but now he wont take it at all. ive tried adding some vanilla extract, still no. so he is only getting about 5 oz a day, and mostly thats cos i mix it with some rusks so he…See More
Beverley replied to sonya's discussion update on jamie for anyone interested! lol"Sounds good, Sonya. Fingers crossed. X"
Jenny Rawling replied to sonya's discussion update on jamie for anyone interested! lol"That all sounds positive - let us know how you get on with the new regime. Jen xx"
sonya posted a discussionupdate on jamie for anyone interested! lol
Hiya..well we went back to paed today, the stool sample showed up negative but he gave us script for neocate and made us an appt with dietician as he said that there is still a chance he has intolerance as it doesnt always show up on the test. So we are back to cutting out all the dairy stuff, and giving the milk. Thankfully he walopped (not a real word, i know!) his bottles, thank god. i was worried cos it stinks! so that is the first hurdle cleared :) we are now only giving the losec 20mg and…See More
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8 months of hell!
Hi guys, i think i'm just looking for a bit of support really. We have had a really desperately hard time with our second little boy..he's 8 months (we have a 3 yr old boy aswell) and has struggled in pain with silent reflux since 2 weeks old. he was two weeks early and slept for the first two weeks, but boy has he made up for it since! We have been through the whole palava of milks, he's currently on Aptimil comfort milk, he definitely doesnt respond well to normal stage 1 or 2 milks. We…
ContinuePosted on November 8, 2011 at 21:35 — 3 Comments
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