LittleRefluxers

katie price
  • Female
  • surrey
  • United Kingdom
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My God, poor you and poor Abbey. You really do have a lot on your plate. Are you getting much help from family and friends? Is the gastrostomy easy to look after and how well did she recover after the op? Has it ever come out and can she have a bath…
June 8, 2009
katie price added a blog post
Hi My LO has severe reflux and the Paeds have slowly been working their way through all the various tests to eliminate anything else. They found she had a heart mumour caused by pulmony stenosis and then reffered us to a genetisist last week. He thi…
June 6, 2009
Hi Kelly, I have only just joined this site but have spent hours reading all the blogs and have to say that it's hard to believe that there are so many of us out there suffering so much. You really do sound as if you are having a hell of a time. My…
June 6, 2009
Hi Liz, Yes, i have been told that it's linked to the reflux. Apparently reflux babies produce excess mucus to supress the acid which can make them retch and gag especially when they are lying down. Sometimes she just spits up bubbly saliva which ag…
June 5, 2009
Hi Yes our baby does this all the time, it really can be horrible. As far as tips go nothing to suggest really I'm afriad, our paed referred us to a speech and language therpaist to look at the way he swallows but the waiting list is 8 months ! Has…
June 4, 2009
If my wee one is really bad she sounds like a demented donald duck, not sure if this is the same noise as yours, I ended up recording her on my mobile phone as hv and gp didn't believe she was making this noise and it was as bad as I made out!
June 4, 2009
katie price added a discussion
My little one has had bad reflux for 6 months and has a very strong gag reflex and retches a lot especially during the night. It can be quite scary and sounds horrific! Does anyone else's baby do this and any tips?
June 4, 2009
Hi Katie Yeh all OK with me - I will give you a call tomorrow evening (Wed). Last night was a bit hectic for me and was going to call you tonight but I see you are lucky and have an evening off! I will call you once Rose is asleep so should be arou…
June 2, 2009
Hi Fiona, Hope all is OK with you. Let me know when is a good time to chat for you. I am out this evening (a rare treat!) but normally any evening around 7.30 is good. Hope you are having a good week. katie
June 2, 2009
Hi Fiona, Evenings are good for me, Orla is normally asleep by 7.30 so that would be a good time to chat. How old is Rose? Orla is on Neocate too, plus ranitadine (omeprezole didn't seem to work so well for us) and Domperidrone. Talk soon
June 1, 2009
Hi Katie Yes I know what you mean about seeing the other mothers with their nicely behaved babies! My NCT friends are great but as you say they have no idea! I get a bit envious at times - not that I would swap Rose for any other baby - but I feel e…
June 1, 2009
Hi girls...i live in selsdon, surrey near to sanderstead?? not sure if thats near to any of you? my boys are alot older than your bubs but am around if anyone needs 5mins to let of steam when the crying gets to much..it is one of the most difficult…
May 31, 2009
Hi Fiona, Thanks for getting in touch. It would be good to meet. I have a very supportive NCT group but they just have no idea what I have been through and sometimes meeting up with them makes me feel worse when I see their babies feeding away so ea…
May 31, 2009
Hi I have a daughter (Rose) who has severe silent reflux...so she doesn't puke but she does scream a lot! I live in Walton on Thames in Surrey. It would be good to meet someone else who really understands the situation as I don't know anyone else w…
May 30, 2009
katie price added a blog post
Hello, My little girl Orla is now 6 months old and she has suffered badly with severe reflux since birth. She has struggled to gain weight, is on various reflux meds and Neocate formula and had an NG feeding tube for 3 months. Although we have now g…
May 30, 2009
katie price is now a member of LittleRefluxers
May 30, 2009

Profile Information

Hometown:
new malden
County:
surrey

Katie price's Blog

katie price

Noonan's syndrome - does anyone suffer with this or know anything about it?

Hi
My LO has severe reflux and the Paeds have slowly been working their way through all the various tests to eliminate anything else. They found she had a heart mumour caused by pulmony stenosis and then reffered us to a genetisist last week. He thinks that she has something called Noonan's Syndrome which affects one in 1000 babies. The main symtoms are poor feeding, poor weight gain, reflux, short stature, heart problems, drooping eye lids. poor hearing etc (the list is frighteninglllly endless… Continue

Posted on June 6, 2009 at 8:14pm —

katie price

Calling fellow reflux suffers in surrey

Hello,
My little girl Orla is now 6 months old and she has suffered badly with severe reflux since birth. She has struggled to gain weight, is on various reflux meds and Neocate formula and had an NG feeding tube for 3 months. Although we have now got rid of it she is still very hard work to feed and is still puking 40-50% of her feeds. Life has been tough and up until now I really haven't had time to look for other reflux parents in my area. It would be great to meet up with fellow parents who… Continue

Posted on May 30, 2009 at 12:15pm — 7 Comments

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