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Theresa
Theresa
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  • Chester
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Anyone have an older reflux baby?
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Started this discussion. Last reply by Theresa Aug 21, 2008.

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amanda ogden commented on Theresa's blog post 'Finally a way to get rid of reflux'
just read your story and sounds fantastic, my son is 6 months old and i wondered if its safe to try him on whatever you discovered,where would i find out more?? many thanks
Nov 12, 2010
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paula whittaker commented on Theresa's blog post 'Finally a way to get rid of reflux'
Yeah i am going to try this,.....already bought myself some as i am on omeprazole for the same thing, and am going to see about changing Ella's vitamin drops for ones with a higher level of b12 in them. Don't want to just do it as Ella was…
Jul 14, 2010
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Theresa commented on Theresa's blog post 'Finally a way to get rid of reflux'
It can't do any harm which is why we tried it - the consultant has conceded that this is the cause and has prescribed this for my little man. You could always just go for it. I worked on the basis that I had tried everything else, nothing…
Jul 14, 2010
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paula whittaker commented on Theresa's blog post 'Finally a way to get rid of reflux'
Omg Emma, Ella does all these things too, like the banging one leg & she shakes her foot too, always has! Has got me wondering now....
Jul 13, 2010
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Theresa left a comment for Sian Thomas
Sian, it may or may not be the fact that there is a b12 problem but I was deficient and it managed to transfer to my little man. William's consultant is still sceptical but reflux is a symptom of it. We tried everything going, contacted people…
Jun 30, 2010
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Theresa and Sian Thomas are now friends Jun 30, 2010
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Amy Davis commented on Theresa's blog post 'Finally a way to get rid of reflux'
hi if i tried this could it do ANY harm???
Jun 24, 2010

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Hometown:
Stanney Oaks
County:
Cheshire

Theresa's Blog

Theresa

Finally a way to get rid of reflux

I havent posted on here for a while. I have been hunting for quite some time. Having come back and read the same stories, I feel like with the information and research I have done, I feel like an Oracle.

I have had two children, one a sicky refluxer and one a silent refluxer. The second is now nearly 3 and was not great still until 6 weeks ago when we found the magic cure we were looking for.

In two weeks, we went from, wouldn't sleep at night, grumpy, wouldn't…

Continue

Posted on June 22, 2010 at 1:49pm — 8 Comments

Theresa

Book update and hello to a friend........

Redoing the book.......



Well, I have all the info I need, the book is being updated as I write here and an amended version will be posted soon.



Ravi, if you make it onto here, check out all the parents who are having similar experiences to the ones I had.

They have no medical support, only each other and shared experience, most are confronted with medical ignorance of some sort or other. Read the stories, there are many who are remarkably similar to… Continue

Posted on April 24, 2009 at 6:56pm

Theresa

Research into potential improvements in Reflux.

This is just for info and to give a little bit of hope to people out there having as hard a time as we have. William is my second little person to have had reflux so we are unfortunately not new to all of this.

Been trawling the web in various languages again today for some more potential avenues to help William. Found some more new potential stuff to help.

Will check all of…

Continue

Posted on February 10, 2008 at 11:27pm — 6 Comments

Comment Wall (9 comments)

At 10:51pm on January 20, 2008, TheresaTheresa said…
Hi all,

Just joined, I am probably one of those really unlucky people who have had two kids with really bad reflux. Eleanor is now 4 (and a half) and William who is 5 months.

We 'get through' every day one at a time.

I will update this page as soon as I have the energy!

Hope to hear from others like me...especially if you are around the Cheshire Oaks area.

Take care

Tracy
At 12:40pm on January 22, 2008, Freya's MumFreya's Mum said…
Hi Tracy

I noticed in one of your posts you are under the countess for William's reflux, so am I Freya see's Dr Newby, who do you see?

I know wht you mean 'get through' each day, but hopfully its not for to long.

How old was your little girl when she grew out of it??

I am lucky I have a boy (nearly 5) who has had no problems.

Karen
At 9:20pm on February 5, 2008, MichelleMichelle said…
Hi Tracy

Just reading some of your posts and you certainly sound like you have been through it and still going through it. What a nightmare. Every time I read a post on this website I have tears in my eyes reading the agony the little ones and their parents have to go through.

I was interested in your comment about the exact timings of the domperidone. You have obviously found this to be crucial?

My daughter is 4 1/2 months and we are still trying to find the right med combination and other factors to have her settled.

Thx, michelle
At 9:29pm on February 5, 2008, MichelleMichelle said…
Me again.... just interested to hear how the milk testing goes. I am pretty sure that my daughter has milk protein intolerence but do you know if there is an official test for it? I did dairy free for a few months and she was much improved. I gave up breastfeeding last week and tried her with some normal formula whhich she didn't tolerate (screaming and huge amounts of wind). She is now on neocate which has still been quite hard for her to get used to but she is getting better. I am wondering what tests could be done to see what the intolerence issue is and at what point to we know whether she has outgrown it. Do you have any experiences on how to deal with this. My son had reflux too but no dairy problems so this part is new to me.
At 4:37pm on February 6, 2008, HelenaHelena said…
Hi Tracy
Have been reading some of your posts and thought I'd drop you a line. I'm being treated for postnatal depresion at the moment after a long and hard battle to get my baby daughter Alexandra diagnosed with her silent reflux. Despite being a mother of two as well as a nurse, I went through the same nightmare of being dismissed, patronised, etc... by both my HV and my GP to the extent that I lost my self confidence as a mother although I was damn sure that something was wrong with Alexandra. When in the end I demanded a referral to a pediatrician my HV sent them a letter before the appointment basically implying that I was overanxious and paranoid. The pediatrician had made her decision about who I was even before meeting me, so I had to fight to get her to listen to me and to examine my baby. Luckily, despite her prejudice, she soon realised there was something wrong with Alex and put her on medication.
She's been admitted in hospital 3 times since then, requiring tube feeding in one occassion due to severe esofagitis.
I'm still waiting for an apology from my HV and my GP.
She's now on Omeprazole, Domperidone and Infant Gaviscon as well as on concentrated Neocate since she can't manage big volumes of milk. She's had a barium meal and is due to have an endoscopy soon as she's losing weight and the medication doesn't seem to work that well at the moment.
Fortunately, she still seems to find a reason to smile between feeds and that keeps us going. She is a sweet little thing- when she isn't crying her eyes out and screaming the house down, that is!

All the best
Helena X
At 10:04pm on February 7, 2008, TheresaTheresa said…
Hi Helena,

This is going to sound really hard line, but I was given this advice and it really helped.

Health visitors - great for babies with minor problems, as much use as a chocolate fireguard for anything else. Don't expect too much and then you wont be dissappointed. You will have one of two types, "Well see your GP", or "Put up and shut up", the opinionated type who knows everything. The last one is the type that moonlights as a pediatric specialist in their spare time (well they must as they know everything).

GP's... a strange breed. You will get, "Hmm, I hear what you're saying but see how it goes"... "If you really feel you have tried everything, have some Gaviscon" (product of the year, saviour of the universe and CHEAP first port of call with GP as it is easy on the budget and shuts you up at least temporarily). Finally you might get, "Ok, if you really think you have exhausted all the options, i'll refer you", followed by "grumble grumble" or "ok".

You need to remember, no-one promoted the GP to status of childrens god. GP equals human...well only roughly, in some cases.

Eleanor saw a pediatrician only when she was ten months old. I had no external family support, Gaviscon by the bucket full and little else. I remember practically nothing of her first year but took lots of photos and video. A lot of what you think is depression is adrenal burnout from the sheer stress of dealing with a baby that doesnt stick to the rules and is really demanding all the time.

Hang in there. I came out of it when I was sent to the counsellor and realised, she knew bugger all about my life, no-one lives with what I do on a day to day basis. My life is damned hard with a baby, whether she is just difficult or otherwise and it wont be forever. You can only do your best and after having a really tough time where I didnt bond with my little girl for a year and a half because I was too exhausted to feel anything, we are now best friends and she is a happy, healthy kid who wants nothing more than to be like mummy.

Helios do something homeopathic called "Rainbow". It lifts the haze you feel and allows you to see clearly. As a complete sceptic, I expected nothing from it and it worked for me.

Take care

Tracy
At 12:01pm on February 13, 2008, MichelleMichelle said…
Hi Tracy, thanks for your response. Interesting what conflicting advice is given on babies. I was told that it would take up to 2 weeks (and it did take that long) for the effects of the dairy to get out of my system. We did try an ostepath for my son and it did help but at 50 pounds a week it wasn't a long term solution and not effective for us to justify it. I am looking forward to the day when I can try normal formula in her solids and see the reaction as I am still not convinced about the whole intolerence issues.

How old is William now?
At 11:23am on March 3, 2008, JoanJoan said…
Tracy,

I am sorry you are so disheartened and that you pretty much had enough. I can fully relate how you feel, although Leila is only two months old. I can just imagine how you must feel after six!!! I am hoping Leila grows out of this thing quickly as I know some children suffer from it up until two years of age! I try to take one day at a time. I am on a strict diet, i.e. no dairy and no gluten and cutting out the gluten seems to help. Is you little one on bottle feed? I am sure you've already adjusted your diet. It's bloody hard, but when Leila has a good day it feels like heaven for me. Last week she had a very bad day, my house was full of dust of building works, my husband was rushed to the hospital with a stomach bug. She was crying, I was crying and all I wanted was a glass of wine to calm me down, which is of course a no-no as well. All my family are back in South Africa and I just broke down. I realised it's good to cry and break down sometimes to get all the built up frustration out of your system. I also find the whole medication thing hard, cause she is so tiny and already on so much medication. I know nothing I say can make you feel better, but just know you are not alone out there. There are more of us, but also know we will get through this. It does get better and it only takes time.
Good luck!
xx
At 10:28pm on June 6, 2008, TheresaTheresa said…
Well, its been a while since I was on here so thought it was about time I shared some knowldge and some thoughts.

There are a lot of recurring comments on here and a lot of people advising on what worked for them - which is wonderful, any newbies have to rely on people to respond to their queries.

I have been lucky enough to have access to some of the worlds best experts who have helped me understand why my little monkey is now 10 months old and still shoing signs of severe reflux when we try to take down his meds.

I am in the process of finishing off a word document with as much help as I can possibly give to parents like us who find they have a little person who is a refluxer. Having been through first the puke for England type and then the silent type we have been through it.

I have been through the GP from hell, for the record, antidepressants will not fix your child, it just dulls the screaming slightly as parents of refluxers are obviously neurotic a lot of the time.

I have also been educating the next pediatric students in what reflux actually means for families (no its not just indigstion like you get whenyou are pregnant or old), its something that can drive families to breaking point, ruin relationships and cause behavioural problems in the rest of the family as other children dont get a look in. For anyone out there who is beating themselves up over whether they are doing a good job....there are more reflux babies cited in cases of shaken baby syndrome than anything else. Aim for survival, not perfection.

For anyone out there reading this who is sleep deprived, tired, miserable, surrounded by dirty dishes and a scruffy house, has just had argument number 350 with their partner because thats the only outlet you have for the drill like cries of your screaming little person, or hungry as they are still fighting to eat a hot dinner without the screaming baby allowing you a few mouthfuls.....its ok...it really is and it does get better, 10 months is an extreme case.

All of those parents who look pristine and can go out with full make up and do all the normal things that you expect with a baby, good for them, they don't live with what you do. One small goal every few days at first is a great achievement, so you can stop beating yourself up.

Domperidone, Omeprazole and Gripe water are great. Drinking water in babies makes reflux worse, we added cucumber juice to the water we give our little man, its alkaline, it works.

Have to go now, littel person crying. For the record, cranial osteopath is a wonderful person, recommended for all babies to straighten them out after birth. However, if your little one has something more than just reflux (reflux is often a symptom of a wider problem) then it will last for about a week and then you will have to go back, £37 a week is out of most peoples budgets.

My mini-monkey got weighed today 17 lb 10 and 10 months, half pint!

Take care.

T

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