"Oh right that's interesting, glad it worked! We are on week 5 (I think, the days seem to all merge in to one!) and as I posted his reflux has improved he is still sick & projectiles but around 4 times a day compared to the 20+ before! Just…"
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Tasha Jones
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Heading back to square 1?
4 Replies
So its coming up to 4 weeks on our Neocate trial & there is little if no improvement :( The reflux has slowly been getting better which of course is a relief but the biggest problem is Arlo's…Continue
Started this discussion. Last reply by Tasha Jones May 27.
Finally starting a Neocate trial!
9 Replies
Hi all,Not posted on here in a while, was just same old situation barely coping until our hospital appointment today were FINALLY after months of endless trips to the doctors they listened &…Continue
Started this discussion. Last reply by Jenny Garcia May 6.
Another new GP with no answers :(
13 Replies
Back again after seeing yet another GP who again dismissed cmpi quickly, even after me explaining and showing documents that Jenny on here kindly sent to me, showing him day dairys of my sons…Continue
Started this discussion. Last reply by Tasha Jones Mar 4.
Milk Intolerance/Allergy?
13 Replies
Hi All,Posted a few weeks ago my son's situation, and how I have a gut feeling he has a cows milk protein intolerance / allergy. I recently went back to the doctors (AGAIN) and had the rudest doctor…Continue
Started this discussion. Last reply by Tasha Jones Feb 26.
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"Yeah it really is for him, the hot weather isnt helping we havent slept for days! Oh right didn't know that yes hopefully she will have something that actually works! Thank you, think it just all gets to me on bad days, who thought it would be…"
Helen Milne replied to Tasha Jones's discussion Heading back to square 1?"I'm sorry I can't help with the eczema. One of my friend's baby has it very badly and I really feel for you. However from the Neocate point of view it took us 6 weeks to see any improvement and then it was just like a…"
Jenny Rawling replied to Tasha Jones's discussion Heading back to square 1?"Poor Arlo - that sounds miserable. Taking the positives from your post, the reflux is improving and that's great! I think it is only a small proportion of eczema cases that respond to diet restriction - hopefully the dermatologist will be able…"
Heading back to square 1?
So its coming up to 4 weeks on our Neocate trial & there is little if no improvement :( The reflux has slowly been getting better which of course is a relief but the biggest problem is Arlo's eczema, he is practically covered head to toe & it is thick, red & extremely itchy for him. After a hospital stay for a meningitis scare (thankfully it wasnt!!) they noticed how bad it was and gave piriton and eumovate steroid cream. This worked for the week we were allowed to use it for but as…See More
Jenny Garcia replied to Tasha Jones's discussion Finally starting a Neocate trial!"You're very welcome. I'm no doctor or expert, obviously, but my friends little boy was a very healthy weight too, yet he was allergic to milk, nuts and I can't remember what else. This may not be the case with your LO at all, and…"
"Hi he's actually took it to really well so I've been able to give it straight the way with no mixing which makes it easier! Oh really that's interesting we haven't been offered any testing as of yet as the pead. had said because…"
"He actually took it to it really well after a bit of singing to distract him the first time haha but drinks it fine now, hopefully start to see some improvements soon! Yes everything certainly does seem a life time right now I'm really praying…"
"Oh really, I hope I see improvements soon even though its been so long to even get to here now It's just like come on please work now!! Haha, I shall persevere though, reflux and eczema seem to have taken a turn for the worse atm but I think I…"
"Hi thankyou,
He has taken to neocate alot better than i thought actually, the first night I had to sing to distract him haha but now he is fine. His reflux has seemed to worsen though but I think I read before that that can be quite common, I just…"
Jenny Garcia replied to Tasha Jones's discussion Finally starting a Neocate trial!"Hi Tasha
On Jen's advice we did the gradual mixing of formulas just this last couple of weeks (thanks Jen). My LO really wasn't keen on neocate either. It is pretty pongy! Anyway it worked a treat, started with 1 scoop neocate to rest…"
Jolene replied to Tasha Jones's discussion Finally starting a Neocate trial!"My mum was helping me with my lo when he was put on neonate. I remember her saying he hates that stuff he hated that stuff, but I stuck to my guns. He's 15 months now and loves it (it's gross) he still loves it in baby rice and sits…"
Jenny Rawling replied to Tasha Jones's discussion Finally starting a Neocate trial!"That's good news! Bit different for us because I was breastfeeding but it took a fortnight on a dairy/soya free diet to see improvement and about 6 weeks to see the full extent of it. For some people it's 6-8 weeks to see improvement, for…"
Beth replied to Tasha Jones's discussion Finally starting a Neocate trial!"Hi Tasha. That's great news. I remember how relieved I was when I got my LO on nutramigen AA (pretty much the same as neocate).
It took a couple of weeks on right milk and meds to start settling down. He didn't seemed to mind the…"
Finally starting a Neocate trial!
Hi all,Not posted on here in a while, was just same old situation barely coping until our hospital appointment today were FINALLY after months of endless trips to the doctors they listened & agreed Arlo probably is suffering with CMPI & prescribed neocate for him to try, kept him on the domperidone & ranitidine medication & reffered us to a dietician. I feel like a huge weight has been lifted now I've been listened too, for a moment I thought I was going mad when no one…See More
"Completely sympathize with you, my son is 6 months and been a bad refluxer since birth, developed bad eczema and rashes over face & body and only today have we finally go the support of a gp to agree to get our hospital pead. to meet us sooner…"
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