Steph's Page

Hi
How have the meds been for Emma since you started on them?

Hi
That is good about the improvement with the screaming. Is she being sick a lot? How much is she drinking a day?
Fraya has eaten really badly today - 10.5oz so far (she is due another feed at about 11pm but she will only have about 4oz). So, it has been a very poor day. I am going to change her milk tomorrow to Cow & Gate (stage 3) in the hope that it was the Pepti milk that she hates and not milk in general! Fingers crossed!

Hi

Wow - Emma feeds well! How old is she now? What does she weigh? Fraya is 6 months and weighs 14lb 3oz but she was only 6lb 3oz when she was born anyway. Like you, I knew something was not right from the start. Fraya was never interested in food from day one and when I tried to feed her she would cry and scream! Things have never improved much on that score! Before she started her medication she would eat 5/6 ounce bottles and now only 1-2 ounces! It does make me think that it might be a result of the medication that has caused her to have a loss of appetite but when I said this to the Paed today she said that it was not likely! Hope she is right. Hope weaning goes well for Emma! It has made Fraya worse! She vomits a lot of her solids :(

cheers hun, i will see how i go with these bottles and then decide if needed to go for the browns bottles.

Hi
You should put some more photos of Emma up! She looks cute!

Hi Steph, Not too bad. We have the speech therapist tomorrow. We have an appointment for the biopsy results on Tuesday and we are waiting for Dr Thomson to get back to us with an appointment as our other consultant is rubbish! How is Emma?

Jen x

hiya steph! Things are going okish.. the sickness is barely ever (you watch i would of jinx'd it now lol).. phoebe is still in pain at times through the day. We have follow up appointment on 22nd july. . . my mum and partner neil have been my rocks just lately, helping me and phoebe through this horrible time. She is doing good with bottles drinking 6 bottles of 5oz (the 5oz has only been the past few days). Then sleeping good at night, say last bottle at 10/11ish then waking at 6.30ish. So that is a god send to be honest. She is also teething at the mo, so its never ending for my little cherub with pain at the mo. How are you getting on with your little one? xx

think i did tempt fate, phoebe last night was awful and this morning she is refusing to drink her milk again... arrgghh x

Hi
Sorry I have not replied for a while - each day is a nightmare trying to get Fraya to eat and cleaning up vomit! Today she has slept loads so it has given me a lot of chance to go on the internet. How is Emma doing?