Laura Perks's Page

"rosan said to me this week that if poo is bright yellow it's usually a bug .... hope that helps ??"

"She's really good. My cover only pays for 2 appts, but we'll pay ourselves now.  £180 for first appt (1 hr) £95 for follow up appt (30 mins) £65 for telephone follow up (30 mins) £100 additional for full…"

"I agree with you Edel, it sounds far more than CMPI and reflux. If it were simple CMPI then he would have improved considerably with no dairy in his diet, the long and short of it is that he hasn't (like my daughter). With the eczema too,…"

"I'm on anti-depressants too, and feel exactly the same way. nOW i've been on them a little while i can see how necessary they were, but it saddens me so much that I haven't been able to enjoy DD2 as much as I did DD1, and I'm not…"

"That's interesting, ours are v.mucousy too, but she seems kind of ok in herself (as much as she ever is !!), I've just emailed Rosan to see whether to continue though as today she's hardly drunk, and has produced 5 yellow water…"

"3 times a day is pretty good going ! We didn't respond well to neocate spoon, not a reaction as such, but just made her constipated then when she did go it was mucous followed by water. We're up to one v small ice cube of butternut…"

"Wonderful news !! really hope it continues and this is all the diet and meds she'll need to keep her comfy and happy. I love the name Hattie too, I have a good friend called Harriet so I opted for a Lottie instead ;-) xxx"

"Of course I dont mind you asking - i got so much advice on this site in the early days, so I want to try and help too.  Dr Shah recommended Rosan Meyer as dietician, her way of working is to start very very slowly, one thing at a time for 3…"

"Seeing Dr S again 'after a period of weaning' but we're in touch by email. We've finally tried to start weaning this week, so I reckon maybe 4-6 weeks. "

"Ours was night-time waking too, we weaned off slowly, but not massively slowly, half a dose a week I recall. But we hadn't been on it long, and it wasnt doing anything for us (apart from constipation & night waking !) x"

"We were told, as per many others across the country that the manufacturer had issues with the glass bottles they were using, so they've stopped production for a while - no release date as yet for when they'll restart. Lorna did say that we…"

"That's naughty. I had to switch GPs in the end as mine was appalling. Our current one just goes with what Dr S says so I dont know if he can over-ride them :("

"She did have mucous, and has twice had little bits of blood, but weirdly he still thinks she's "one of his good ones" as he put it. I'll take his word over anyones !! She's 6 months, better than she was, but still lots of…"

"No way !?!?! That's appalling Katie, tell Dr Shah !! I take my letter in from Gt Ormond St as some chemists try to refuse to give it to Florence as she's under 2. They've never won yet ;-)"

"My neighbour's daughter has this, she's under Dr Shah at Gt Ormond St. It's a very textbook thing / reaction - quite specific re: the vomiting and going into shock, there's lots of info online about it. She's doing really…"

"Sounds very similar to us Katie, we were on omep, but stopped it. Now on ketotifen (haven't progressed to nalcrom yet as Dr S feels she's improving on ketotifen). Though we did have scopes after she had a little bleed. Showed what…"