Helen Milne's Page

"I asked about Neocate Spoon because Charlie doesn't drink fluids (dairy/soya free) and therefore we had difficulty getting calories into him.  However because he was having a weight gain (if a bit slow) we were told to just keep going on a…"

"I'm sorry I can't help with the eczema.  One of my friend's baby has it very badly and I really feel for you.  However from the Neocate point of view it took us 6 weeks to see any improvement and then it was just like a…"

"Bit chewy but because it was minced he just swallowed it really.  It's quite a greasy meat so slips down well.  "

"When Charlie was going through a bad patch I went back to our "safe" foods of lamb, rice and butternut squash. I used minced lamb and mushed it into little balls with the rice and squash. Very messy but Charlie loved it."

"We were told to stay allergen-free until 1 year (in our case oats/soya/dairy) and start introductions in that order.  We were successful with oats but not soya.  We were then told to try again in 6 months, which we are now overdue but…"

"Charlie's always done this and we've assumed his reflux was cured for a year (dairy/soya free).  He always does it when he is anxious and usually preceeds crying.  He was tube-fed until 10 months and can still be anxious at…"

"My son was ng tube fed at home for 7 months (from 3-10 months) and we still need to insert a tube occasionally when he is ill.  I know quite a few people feeding by ng, peg, j-tube and even TPN but only have personal experience of ng-tube.…"

"Why can't they put in an ng-tube if they're worried about his nutrition.  Charlie had one until 10 months old and occasionally has one when poorly.  It's just that a peg seems so much more permenant and needs an operation to…"

"Definitely sounds like cow's milk intolerance to me.  Charlie was 100% tube fed until we were able to stop the vomiting and pain.  None of the drugs made a slightest bit of difference and as soon as we sorted the milk then he came of…"

"TBH we tried absolutely everything including a Haberman and Charlie refused them all.  We had to sort out the pain before he started eating and by that point he was associating me with the pain so he started with baby-led weaning.  In fact…"

"No.  Lactose is a sugar not a protein.  I'm afraid lactose-free milk and cheese are not suitable for CMPI."

"I know a reasonable amount about blood sugars as my son has a rare condition called hyperinsulinism where his blood sugars drop on a regular basis.  He was very poorly when born and spent the first 48 hours fitting because they couldn't…"

"Kate - I just thought I'd bump this up as you've been struggling a bit recently just in case you wanted to talk to anyone about tube feeding.  Charlie needed to be topped up with the tube earlier this week so I thought of you and…"

"I can't really add anything else to this conversation except to say that it took 6 weeks for Neocate to work on Charlie.  He was iv-fed for 3.5months and then expressed breast milk for 2.5months before moving to Neocate.   We…"

"You are not alone in thinking about this although one of the bravest actually admitting it.  The nights are the worst - just getting to sleep and then the crying/coughing starts.  I was sick of being the person taking beach towels to…"

"Very pleased for you. Sounds like you have had a seriously tough time. Xxx"