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Helen Blundell replied to Jenny Rawling's discussion 'New avenue to explore - caution may be a dead end.....'

Hi, this is very interesting, I would love to know more. I have 5 children my first born (boy now 16) had no health issues. My second born (girl now 14) has CMPI and has 2 sacral dimples, my third born (girl now 12) has tongue tie, fairly mild and…

Nov 21, 2011

Helen Blundell replied to Kerry Greene's discussion 'Please Help'

I feel for you greatly, it is awful to see youdaughter like that I have been there with my son. Firstly all the symptons you describe sound very much like reflux, never doubt your concerns you know your baby and you know when things aren't…

Jan 20, 2010

Belinda commented on Helen Blundell's blog post 'Up all night again.......'

Ok chuck all the best,, One thing i was told the liquid Omeprozole does not have the strength that the tablets do and it expires quickly.... Ask to be changed to the Mups (tablet form), just put it in drop hot water and turns to liquid suck it up…

Jan 7, 2010

Very impressed with consultant..

Hi everyone, after having yet another night of being up nearly all night with my screaming son I rang the consultants secretarys number, not expecting anyone to be there really as snow is very deep but didn't know what else to try.For the second time running the doctor that we see ( think he's the registrar) answered the phone himself!!!, he must have an amazing memory as I'm sure he see hundreds of babies but both times I have rung him he has been able to recall details that we have discussed,…See More

Blog post by Helen Blundell Jan 7, 2010

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Helen Blundell commented on Helen Blundell's blog post 'Up all night again.......'

Hi Belinda, He is on liquid omeprazole and for his weight they have prescribed him 1.9ml. Going to have him weighed tomorrow (hopefully not snowed in) then I'm going to ring the consultant and see if dose needs adjusting, don't have next…

Jan 6, 2010

Belinda commented on Helen Blundell's blog post 'Up all night again.......'

How come the meds are so low chuck, may be they need ajusting, my daughter at that age was on 20mg Omeprazole a day, 3.5ml domperidone three times a day, and liquid Gaviscon advanced 2.5ml 4 times a day. And if at night she was uncomfortable i would…

Jan 6, 2010

Up all night again.......

HELP!!! My LO is 6 months old and on 1.9ml omeprazole once a day, 2.3ml domperidone three times a day, 1ml ranitidine three times a day and gaviscon in every bottle. Last night he cried and seemed in pain all night, arching his back and then curling in to a ball, he sobbed 'real' tears and nothing I could do seemed to help, he has been like this again for a couple of weeks, initially the omeprazole appeared to be working but now we are back to square one. What next?????

Blog post by Helen Blundell Jan 6, 2010

3 Comments

Helen Blundell and sharlene wisbey are now friends Dec 27, 2009

Helen Blundell left a comment for sharlene wisbey

Hi Sharlene, Kirsty seems a very good H.V as well, mine is Doreen and she is brilliant, she even rang on Christmas Eve to see if Hueys new medication was working!, thankfully this one seems to be he has stopped the screaming and the reflux has…

Dec 27, 2009

sharlene wisbey left a comment for Helen Blundell

thankyou for your message i go to parkwood my health visitor is kirsty she is absolutly brilliant she keeps phoning and asking how Lola is? im gonna speak to her again and if there's no improvement then id like to try the different medications!…

Dec 26, 2009

Helen Blundell left a comment for sharlene wisbey

Hi Sharlene, My names Helen and I live in Wigmore, Rainham. I really sympathise with you, my son was diagnosed with silent reflux at 6 weeks although I think he had it from birth, my H.V first picked it up, we went to our G.P in Parkwood and he was…

Dec 18, 2009

A week on Ranitidine and no difference yet:( How long should I leave it until I return to the paediatrician?

Status posted by Helen Blundell Dec 2, 2009

Helen Blundell left a comment for Helena

Hi Helena Yes we have been using Dr Brown bottles for about 3 weeks Huey has a lot less wind on them and takes his milk well, he would just prefer to have both bottles and breast really!!!, think breast is mainly comfort for him and is so easily…

Nov 27, 2009

Helena left a comment for Helen Blundell

Hi Helen Yes, this is the disappointing side of the reflux meds, it takes a while for them to work properly, but somehow the waiting doesn't feel as hard going when you know you've been taken seriously. I remember how tough it was weaning…

Nov 27, 2009

Helen Blundell left a comment for Helena

Hi Helena, Huey doesn't seem to be refluxing quite so much during the day although evenings and nights are still quite bad. The consultant did say it could take a week to settle fully though. Trying to wean him completely onto bottles as…

Nov 27, 2009

Helena left a comment for Helen Blundell

Hi Helen So happy for you and your little one! I think having a doctor who really understands reflux is key to things improving. And the fact that you can contact him if things don't get better is brilliant, you know that something is being…

Nov 27, 2009

Profile Information

Hometown:: Gillingham

County:: Kent

My son was diagnosed with silent reflux when he was 6 weeks, he is now 5 months and we still have nothing really undercontrol. He was put on Gaviscon, which was a nightmare to give as I was breastfeeding him totally then, then he was put on domperidone, which the dosage has been changed on twice, still he screams and refluxes.Now they think he may be dairy intolerant so I am on a dairy free diet and he is on Nutramigen for the 2/3 bottles a day he now has. He still screams and cries, some days it feels like all the time you can physically see him reflux all though he is only sometimes sick, we have tried so much, raising his cot, keeping him upright and still after feeding and on really bad days I carry him around in a sling. We have no real set routine and he just appears to be in so much pain all the time, we now have a consultant appointment on Tuesday I so hope they have got an idea what else we can do.

Helen Blundell's Blog

Very impressed with consultant..

Hi everyone, after having yet another night of being up nearly all night with my screaming son I rang the consultants secretarys number, not expecting anyone to be there really as snow is very deep but didn't know what else to try.

For the second time running the doctor that we see ( think he's the registrar) answered the phone himself!!!, he must have an amazing memory as I'm sure he see hundreds of babies but both times I have rung him he has been able to recall details that we have… Continue

Posted on January 7, 2010 at 11:17am

Up all night again.......

Posted on January 6, 2010 at 9:24am — 3 Comments

Comment Wall (4 comments)

At 10:57am on November 22, 2009, Helena said…: Hi Helen
So sorry to hear you and your son are having such a hard time. Hopefully your appointment on tuesday will be productive and things will improve very soon.
In terms of medication, there's a lot they can do. I can see your son is not on any medication to reduce the production of acid in the stomach, which is what causes the pain when it goes up the food pipe. Some drs tend to prescribe Ranitidine first and if this doesn't work then it's Omeprazole which seems to be a much more effective drug for reflux, hopefully you'll leave the consultant's office with a prescription of this in your hand.
Your son sounds pretty much like my daughter when she was around that age, in her case omeprazole was the thing that really made a difference to her pain and improved her quality of life.
I guess what I want to say is that it does get better, it WILL get better.
Please let us know how the appointment goes.
Helena x

At 9:08am on November 27, 2009, Helena said…: Hi Helen
So happy for you and your little one! I think having a doctor who really understands reflux is key to things improving. And the fact that you can contact him if things don't get better is brilliant, you know that something is being done and more will be done if need be.
How's is he doing so far? And how are you feeling?
Helena x

At 2:39pm on November 27, 2009, Helena said…: Hi Helen
Yes, this is the disappointing side of the reflux meds, it takes a while for them to work properly, but somehow the waiting doesn't feel as hard going when you know you've been taken seriously.
I remember how tough it was weaning Alex off the breast, bless her. Which bottles are you using? We tried sooo many until we were advised to try the Dr Brown ones and they worked wonders for us. Alex seemed to reflux less on them and also because the milk flows out she didn't have to work so hard and less sucking effort resulted in less air intake.
Hope things continue to improve :-)
H x

At 8:00pm on December 26, 2009, sharlene wisbey said…: thankyou for your message i go to parkwood my health visitor is kirsty she is absolutly brilliant she keeps phoning and asking how Lola is? im gonna speak to her again and if there's no improvement then id like to try the different medications! i cant stand to see my baby in pain it breaks my heart i just wish i could take her pain away! i have no routine either so completly sympothise the only thing we do have is our evenings she gets her sleep and we know shes not in pain but during the day is so hard! i couldnt leave her with no one, i woudnt feel comfortable cause they wouldnt know what to do to comfort her as i dont sometimes and im her mummy, you just feel so helpless dont ya? hope your appointment is helpful let me know! xx

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