"Hi Anita
I only have experience of nalcrom which I'm guessing he has prescribed . My only tip is it takes about 4 weeks to get full effect from it. Incidentally were you in Starbucks after your appt? X"
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Harriet
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Harriet's Discussions
If I cant rant here...
6 Replies
Hi everyone just thought I'd have a rant. Not many places I can do it really as most people are bored silly hearing about it - as am I. When will this craziness end! Spent the day doing what I seem…Continue
Started this discussion. Last reply by Belinda Feb 3, 2011.
Reacting to Neocate Active/Advance??
11 Replies
HiWe were given Neocate Active and Advance on Thursday to help Billy increase his weight/ growth nutrients etc. We were aiming for 600ml a day. He happily (with the help of strawberry nesquik) took…Continue
Started this discussion. Last reply by Teresa Jun 14, 2011.
Wheat free gluten free bread and pasta if anyone wants it!
1 Reply
Hi as Billy is now off soya I have 4 loaves of glutafin White loaves (400gm) each. They are free from gluten wheat and lactose ( although I would say dairy free as nothing in ingredients). 1 box of…Continue
Started this discussion. Last reply by Belinda Dec 6, 2010.
eosinophilic disorders???
12 Replies
Hi Emily you got me googling. Have you heard of the above? Makes sense for older refluxers that have got better after restricting diets but still not fully responding to ppi's. Just a thought but…Continue
Started this discussion. Last reply by Clare Jenkins Nov 22, 2010.
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Latest Activity
Harriet replied to Em's discussion Struggling for breath!"Hi there
My son who is now 2 years old has always struggled with various breathing issues. He has various gastro/reflux issues and also breathing probs. My personal advice is to use your gut instinct. If you ever ever feel that your loved one is…"
Harriet replied to joanne bradbury's discussion Diarrhea for 4 weeks...looking for advice!"Hi Joanne
How did you get on at the hosptial/dr today? have you asked for neocate? im not so sure only rice is a good idea. at least get some dioralyte to replace electrolytes etc and perhaps make sure a dr knows you are doing this. just a thought…"
Harriet replied to Helen R's discussion Help- Paed and Lactation Consultants London"Hello dr shah is away I believe so the best options are dr lindely or dr elewad. Good luck"
Harriet replied to Sharon Hough's discussion New to this site, any help/advice would be appreciated"Hi Sharon
Welcome . Sorry you are having such a rough time . My advise would be if she is still having apnoeas take her to a and e. We experienced this with our son who is now 22 months. Depending how you feel I would insist on seeing a…"
Harriet replied to Jenny Rawling's discussion Feeling unwilling to rock the boat - what would you do?"Yeah I'd enjoy it too! And when you are ready maybe drop 1mg a month as there is no rush at all xx"
Harriet replied to Lisa's discussion Why chicken???"Sarah b how do you know all this stuff! Its fascinating ( not what I thought I would be finding so but hey ). We have been advised that when we reintroduce billy to food to start with game meat like venison pheasant even zebra. I was led to believe…"
Harriet replied to Tracey Louise Howes's discussion Gastro recommendations? we live in Shropshire but will travel"Feel sorry for you guys. Was going to comment yday that I didn't think wysoy was the right thing. So pleased you have the neocate abd so sorry you have had the terrible time with your gps. They need a big fat complaint letter sent to the…"
Harriet replied to jo's discussion food intolerances again !"I know what you mean. Sometimes i know its easier not having to food trial, however i still feel Billy isnt 100 stable on his modular feed and he apparently should be. Hopefully new dieticians are going to try and tweak it. Interesting about the…"
Harriet replied to jo's discussion food intolerances again !"hmm this article is making more and more sense to me the more i read it. Im starting to go through Billys medicines so far Ketotifen contains e216 and 218 both named in the article as causing problems..."
Harriet replied to Sarah Mason's discussion This might be a silly question but....."Hi sarah sooty just a brief reply but I'd say yes back arching is a def sign of pain. Billy is never constipated on gaviscon - worked wonders for him givin it when he was in pain when his gullet was inflamed. Also seemed to produce a good burp…"
Harriet replied to jo's discussion food intolerances again !"Finally got round to reading this. Fab link makes so much sense to me ( lots of lightbulb moments). Interesting about leg cramps . Billy has always rubbed his legs together at first sign of pain. I will be printing it out and giving copy to gp to…"
Harriet replied to jo's discussion playdough"No I don't think it's crazy. When Billy plays with playdough ( not eating it) he goes bright red, gets really manic and sweaty for about 2 hours. I thought I was imagining it the first time but I let him play with it every week at playgoup…"
Harriet replied to Emma's discussion Scope and impedance results"hi Emma
Billy has nodular lymphoid hyperplasia in his colon which is bascially inflamation i think. I stopped bf at 12 months then snuck sccops of neocate into his food but knew he was reacting to it so gave up. By the time he had blood tests at…"
Harriet replied to Emma's discussion Scope and impedance results"Ah I'm with you Bev. We have no diagnosis for Billy and hate to admit people only started to believe me when he was admitted to gosh for 3 weeks and ended up with a tube. It's a cruel illness and bad enough without having to beat yourself…"
Harriet replied to Teresa's discussion Tongue Tie Again"hmm ladies please excuse me for throwing the spanner in the works. whilst i cant dismiss the link for some kids i cant see it for mine and dont see tt as the be all and end all. we are investigating food and environment having ruled out structual…"
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- Hometown:
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Comment Wall (3 comments)
- At 18:26 on March 2, 2011,
Foz said… if u can pm your number i will contact u. it might take me a couple of days depending on the lo. when is the best time to call? i don't live a million miles from u either - i'm in luton
- At 20:53 on April 3, 2011, Anna Curtis said…
- yes, a lot easier. well worth it. i was a bit anxious about taking them but it was the best thing i have done for my family since Nadia's birth. I can cope now, I can enjoy my children, even with reflux and I do tend to have happy days (when without antidepressants it was all gloooooooom). was you thinking you may also suffer from depression?
- At 18:34 on May 25, 2011, Nat said…
- Hello Harriet,
My name is nat and have seen on a previous post that your little one uses Lanzoprazole. Is this still the case??
Just wondering what you thought of it??
Nat x
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