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Beverley's Groups

Beverley's Discussions

My little boy in the press.
11 Replies

This is the reason journalists are hunting me down! Hope it will raise awareness of eosinophilic disorders which can be an underlying cause of reflux. B x
…Continue

Started this discussion. Last reply by laura taylor May 21.

How do you join Reflux Room on facebook?
12 Replies

I'm a member but no idea how that came about! Was going to tell Emma Louise how to do it but don't know what you do?! Anyone able to advise her? 

Started this discussion. Last reply by Helen Milne Jan 14.

Happy New Year Reflux Mums
9 Replies

All any of us want is healthy children in 2012. Here's hoping for all of us.xContinue

Started this discussion. Last reply by Tracey Louise Howes Jan 1.

Hitting and rubbing face at mealtimes - reflux
10 Replies

This morning Douglas (11 months with GORD and food allergies) was crying during breakfast and constantly rubbing his nose and eyes and hitting his head, smearing squash and snot everywhere. I had to…Continue

Started this discussion. Last reply by Beverley Aug 24, 2011.

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Beverley's Page

Latest Activity

Beverley replied to Carine's discussion 12 week old choking/coughing and dribbling!
"Have you thought about getting an Angelcare monitor which picks up any problems with breathing. Can help to give peace of mind.x"
Wednesday
Beverley replied to Lucy's discussion Repeated chest infections / rattly breathing
"Hi Lucy, We are going through something similar but I'm not sure I have any advice. My LO is 20 months and suffered from allergic reflux from birth but doesn't seem to reflux now. He also had bronchiolitis and has had the rattly chest…"
Wednesday
Beverley replied to Rebecca Mordecai's discussion FPIES
"There have been a few people on here discussing it at various points and a few misdiagnosed with it but don't know anyone who actually had it. X"
May 24
Beverley replied to Katie's discussion Appt with Dr Shah
"Great news! X"
May 24
Beverley replied to Beth's discussion Nutritional needs
"Provided he drinks a good amount (I think they say above 17 oz) he'll be fine of Neocate LCP. Douglas is nearly 2 and still on LCP as lots of allergic children don't tolerate the advance and active. The spoon is usually for children who…"
May 24
Beverley replied to Helen Solomon's discussion Breastfeeding & Allergies & Reflux.
"Helen, if you're on Facebook, there's a great support group called Reflux Room and I've got a friend on there who is Aussie and spends time over there. Both her children have severe allergies so she might have some tips. Geography is…"
May 24
Beverley replied to Beth's discussion Oh my goodness
"Everything crossed for you. Keep going slowly and don't try anything else yet as it can sometimes take a few days for reactions to show but it's a really good bet. And such a great food. Douglas has just learned to say "chips"…"
May 24
Beverley replied to Katie's discussion Where to go next?
"I haven't tried mixing the two but I found my LO had terrible wind for the first few weeks on Neocate. I picture it as creating wind while the inflammation is healing. So I would guess that in your case you will be alternating with the breast…"
May 23
Beverley replied to Katie's discussion Where to go next?
"Galina - have you considered switching to Neocate? Breastfeeding a baby with multiple food allergies can be an absolute disaster and it's the most likely explanation for why your LO is not stable. If you leave it too long to switch it can be…"
May 23
Beverley replied to Helen Solomon's discussion Breastfeeding & Allergies & Reflux.
"To be brief, yes, yes, yes, make the switch. There's only so much you can cut out and babies can be allergic to any food protein and even the breastmilk itself so unless cutting out the main allergens works well, you need Neocate or Nutramigen…"
May 23
Beverley replied to Katie's discussion Where to go next?
"I think lansaprazole has less side effects generally and not night waking. It was very much Neocate that made Douglas comfortable. I think the drugs might have helped a little but mostly it was Neocate. But at 6 weeks on Neocate only he was…"
May 22
Beverley replied to Katie's discussion Where to go next?
"Very tricky to advise but it seems like omeperazole might be responsible. Rather than stopping it suddenly (which is never a good idea anyway because the acid can temporarily get worse making you think you need it when you might not) why not ask Dr…"
May 22
Beverley replied to Katie's discussion Where to go next?
"It does sound very wearing and confusing.  Mucous in poo is a sign of inflammation so that would suggest that an allergic diagnosis is the right one but that's my main area of knowledge so not sure if there could be another explanation.…"
May 22
Beverley replied to Katie's discussion Where to go next?
"Hi Katie, That sounds so frustrating. How long has he been on Nut AA and since what age? Have you seen any improvement at all? I may have said that it took Douglas 6-8 weeks to improve on Neocate so improvement may still be possible. In a way,…"
May 22
Beverley replied to Veronica Payne's discussion Some more help please
"Hmm. Douglas rubs his eyes and nose with reflux so sounds likely. Or allergy to something is a possibility. If he's refluxing it could be something in his diet. They don't all completely stabilise on Neocate but some do. If Douglas is…"
May 22
Beverley replied to Veronica Payne's discussion Some more help please
"Is it just at night Veronica? Does he have any respiratory or snotty symptoms during the day? We're back in hospital at the moment still trying to get rid of bad respiratory symptoms which were dismissed as one thing or another for a long time…"
May 22

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Sheffield
County:
South Yorkshire

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Comment Wall (2 comments)

At 22:04 on June 14, 2011, Jemma Leff said…
Actually, was just abt to email u back as read some more and our kids do seem a bit different. I have quite a few questions and it seems u r very experienced with all this, but maybe its best i start a post instead xx
At 22:05 on June 14, 2011, Jemma Leff said…
Actually, was just abt to email u back as read some more and our kids do seem a bit different. I have quite a few questions and it seems u r very experienced with all this, but maybe its best i start a post instead xx

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