"Hi Lucy,
I don't really have much advice but can empathise. My little girl had 17 chest infections in 19 months, almost certainly related to reflux and aspiration. She's now 3 and a bit, and although she has inhalers daily, the frequency…"
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Sarah
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Sarah's Discussions
Weaning the Allergic Baby
17 Replies
Hi all,There have been loads of posts recently about how to introduce foods to Little Refluxers, especially those with potential intolerances.I therefore thought the attached document would be…Continue
Started this discussion. Last reply by Beverley Apr 11.
Vomiting Refluxers anyone?
Hi there,Just curious really. My 10 month old refluxer still vomits excessively. She's on a restricted diet for MFPI weaned from EBF (on MEWS-free diet for me) to Pepti a couple of weeks ago, and we…Continue
Started Sep 13, 2011
movicol - quick question
4 Replies
For those of you with babies on movicol....How old is your LO and how much does he/she have?Also, does your LO take senna too?S xContinue
Started this discussion. Last reply by Sarah Aug 6, 2011.
New Sleep Challenge - anyone have any ideas?
2 Replies
Hi all,As most of you know, I have the World's Worst Sleeper... She's MFPI and a very 'non-silent' refluxer and has been waking pretty much hourly with intestinal spasms or vomits pretty much every…Continue
Started this discussion. Last reply by Sarah Jul 30, 2011.
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Latest Activity
Sarah replied to Anna Curtis's discussion anone's lo got fructose malabsorption?"very easily tested for via hydrogen breath test, Anna"
Sarah replied to Veronica Payne's discussion What Are your children on at a year? Neocate LCP or something else?"I agree, Jenny!
My 18 month old is on LCP and under GOSH. They don't recommend changing to a different formula."
Sarah replied to Jodi Leale's discussion Can I join you? :)"Hi Jodi,
Just to add that ranitidine is sometimes favoured because it is an antihistamine as well. A lot if babies with reflux struggle with inappropriate reactions to proteins in the milk and the antihistamine properties can help. Re the…"
Sarah replied to Katie's discussion Sleeping at night"How old is he Katie? Could it be a growth spurt and waking through hunger. I think sometimes reflux mummies face a particularly tricky trade-off between feeding sufficient to keep them satisfied, and running the risk of increasing the amount…"
Sarah replied to Beth's discussion Nalcrom"Beth,
Just to say that I would certainly give Nalcrom a go. It's a mast cell stabiliser and is described as an "anti-allergy" drug - it works to actually prevent the release of histamine and other toxins in response to allergen…"
Sarah replied to Jenny Garcia's discussion Nutramigen poo's & Weaning. Silent refluxer."Hi Jenny,
If your LO is very sensitive then you may find you need the Nut AA rather than Nut 2. The Milk protein is broken down to short chains in Nut 1 & 2 sort of like it is in breast milk, but the more sensitive babies may still react to this…"
Sarah replied to Jolene's discussion My Story so far..."Hi Jolene, good to hear from you again but very sorry you're still having a difficult time.
Massive hugs coming your way from me because I know how worrying it can be when there's something just "not quite right" and you…"
Sarah replied to Katie's discussion Calpol"Katie, if it reassures you at all, my elder daughter was prescribed medinol 4 x a day from the age of 6 weeks to 8 months.
Amanda is right in that it has limited impact on gut pain, but it DID help her with the associated reflux…"
Sarah replied to Anita Stewart's discussion Its been a while"Hi Anita,
My LO is also under Shah and has prednisolone prescribed. Tanzanian devil is a pretty accurate description for the duration of the course but they really do make a difference to my little girl.
S xxx "
Sarah replied to Emma Bromwich's discussion Blood Tests For Celiac Disease, Immune System and Antibody Issues"Bloods for coeliac are only reliable if your LO has been on a wheat-containing diet to this point. Raised eosinophils are a marker for EGID, but also for other things like an infection so not especially reliable and EGID is only diagnosed by biopsy.…"
Sarah replied to Katie's discussion Appt with Dr Eltumi"Hi Katie,
We give my little girl hers in a tiny bit of pear puree. I used to be very good and make it entirely myself, but Ella's kitchen do a 100% pure pear pouch and I have to confess we now use this (it lasts a few days in the fridge,…"
Sarah replied to emma penman's discussion Allergic gut and new meds please help"This might be of interest to you, Emma.
http://www.aboutibs.org/site/about-ibs/management/medications/gut-flora
S xx
"
Sarah replied to emma penman's discussion Allergic gut and new meds please help"Hi Emma,
Just to back up what Gillian says, Ranitidine is a Type 2 antihistamine (as opposed to cetirizine which is type 1) and this may explain the rationale behind looking to move from the omeprazole to a good dose of ranitidine. It works in…"
Sarah replied to kerrianne crane's discussion Newbie with 11 month old refluxer plus other health problems, needing advice!"Hi Kerri-Anne. The official "gastro" definition is that "intolerance" refers to sugars, and "allergies" refers to proteins. So in fact, the doctors explained right with the stool test, and the terms used on this site is…"
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Comment Wall (1 comment)
- At 10:03 on February 6, 2012, amanda said…
Thank you Sara, Just to put things into context for you in 8 weeks we have been to A&E twice and sent home with a diagnosis of colic. We were referred by the GP to see a pediatrician who diagnosed colic and prescribed Gaviscon & paracetamol reviewed once & discharged. Demanding a second opionion we were seen last Monday & diagnosed with reflux, prescribed ranitidine 1mg twice a day. Feeling very frustrated that the medication did not appear to be helping Noah we tried to contact the second pediatrician but he was unable to speak with us or give us any advice except to say go and see your GP & that he would see Noah as planned end of Feb.
I now understand that you may have to give ranitidine time to work but that has been incredibly difficult. Noah screamed for 10 hrs on Fri night & 14 hrs on Sat night - He appeared to be so frightened at times he would not even let us touch him. So we took him to B'ham childrens hospital yesterday, we did see the consultant pediatrician who spent 45 mins with us despite at least 40-50 people waiting to be seen in the dept.
Bottom line - she prescribed omeperazole (actually not sure of the dose as we have to collect it this morning) & suggested putting Noah back on to SMA stay down milk especially for reflux babies. All of us feeling very exhausted - asking so many questions, it is only this morning upon reflection that I know we need to go back and read your inital advice regarding the milk proteins before changing his milk again.
I can't tell you how grateful I am to you as this journey has been such a difficult one for all of us especially Noah & all we really wanted was a professional who really understands to help us make informed decisions, but just getting here has felt like a real battle and I understand how little some professionals understand this condition.
We are all still learning and pray we make the right decisions for Noah. Thankyou Sara you are a god send, Amanda.
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