"Jabs with babies with silent reflux."

Replies to This Discussion

Permalink Reply by Michelle on December 21, 2007 at 7:08

Hi there, not sure how long he has been on the meds but they can take a couple of weeks to work, so hang in there. You may also need to increase the dose with his weight gain so bare this in mind. My son didn't have a dairy intolerance but my 12 week old daughter has so the meds were not that effective until I cut dairy out of my diet a couple of weeks later, so if you don't see an improvement on the meds it might be worth looking into that as well as it seems a lot of kids with reflux also have an intolerance. My daughter and son both had to be carried the whole time and would only sleep on me until we got the reflux under control. My daughter is only now been in her cot for the last week and she is slowly settling into it, although still wakes at 4am with pain and deoesn't really settle but this is a huge improvement to before. It is really tough bbut hang in there cause it does get better, my son was under control by 6 months (we were slow to get him diagnosed) and off all the meds by a year, but some kids outgrow it much earlier. I hope it improves quickly for you.

Permalink Reply by nikki r on December 23, 2007 at 9:24

Hi Michelle,
thanks for your support and help, oh his only been on the meds a week..............but the losec we are having a prob with, we cant get him to take it........what a knightmare , we have to melt the tablet and draw up 5mg but he chokes, gags, and then spits it all out........................we phd the hosp last night to see if we can put it in his milk, peads said yes only in 1 oz of milk thou..........so done this 2day and the teat (dr brown) size 2 (coz on thicker milk now)
kept getting blocked.........aaahhhhhhhhhhhhhh.. We just want to give him his meds and cant.....................any advise on how to give this to him. Also we have taken to carring Harrison in a sling aroung the house, whats your views on these??? do you use one ?. Only a bit worried if he becomes to used to it, and when his better still wants to get picked up all the time??? Michelle do you know if there is a special test they can do to give defo proof they have reflux???

thanks again, prob look online again over the xmas hols.............
.....happy xmas everyone, lets hope our babies do too!!!!.........
xxxxxxxxxxxx
Nikki r

Permalink Reply by nikki r on December 23, 2007 at 9:57

oh Michelle, sorry i forgot, im from Hornchurch in essex, so not to far from each other.
do you know if you can get losec in a liquid form for them instead of tablet????

Permalink Reply by Nicki on December 24, 2007 at 14:01

Nikki,

U can disolve the tablet in a very little amount of water, do u want to give me a call and i can explain, let me know and i'll give u my mobile number. Nicki

Permalink Reply by nikki r on December 30, 2007 at 19:06

Hiya all,
I would just like to thank Nicki for her kind support on sat night, we had a very good chat and its helped me so much knowing im not alone. Nicki gave me some very good advice, and was sooo understanding, better than talking to the dr's i found.

I would just like to say how much i appriciate this website, i would be a mummy lost and confused in this horrid world of "reflux" if i hadn't found this network.!!!
Thanks again, feel a bit better today as well, hubby took boys today and i had the day for me time..............which was great, last night i slept 14 hrs........god i feel like a new women!!!
Harrison had a better day today as well, maybe the losec is working at last.
(Nicki we are going to call Holly House in the morn for an appt.) Thanks to you, the dr you mentioned may help Harrison.

Thanks so much.
Happy New year
Nikki
xxxx

Permalink Reply by Nicki on December 30, 2007 at 19:50

Hi Nikki,

Ur very welcome hun, i'm glad i could help, pls keep me posted and i hope ur litttle Harrison continues to get better.

Ur welcome to text me ne time or phone 4 a chat.

TC

Nicki.xx

Permalink Reply by nikki r on December 31, 2007 at 13:32

hiya all, (very bad day)
can anyone pls tell me how to get out of the house with my baby, his always crying if we are not holding him...................................i cant get a shower, eat ,ect..................also i have a 5 yr old who is feeling very left out b'coz all mum is doing latley is holding harrison all the time.!!!! even as i post this his in my arms.

im trying to give my other son time but its never enough.....my hubby is trying to but he works long hrs.
How do any of you cope with siblings?
i just want this all to stop, the crying and the constant holding, his also now crying on the bottle and leaving some of his milk which he never used to do why is this, does anyone know??
(We had such a good day yesterday, see post above., thought things are getting better)NOT!!!.
His on losec liquid 5mg , day 5 of this med, which i know takes a bit of time to work .
also gavison.
Feel like im at beaking point, seeing my baby crying all the time just breaks my heart, just want a normal baby!!!! and a normal family life again.!!!
My poor 5 yr old, is finding it hard too!!!!
pls any advise!!!
thanks
Nikki
xxxx

Permalink Reply by Nicki on December 31, 2007 at 19:24

Hi Nikki,

Unfor'tely with silent reflux u have some good days and some very bad : (

Do u have family/friends who could take harrison 4 a walk or drive? U could then spend some time with ur 5 yr old.

My son would also cry all day and nite, and understand its really hard.

My only other advice 2 u would be u can only take each day as it comes, silent reflux takes time to go (my son is coming up2 9 months and still has it).

He maybe off his milk bcos hes in discomfort bcos of the acid?? Have u tried feeding him whilst walking, used to work for me as the distraction of things around him took his mind off the reflux.

I also found letting my baby lie on my chest and or giving him a warm and relaxiong massage helped him relax for a while. I used to give him a massage every morning for about 20 mins in a warm room and he would fall asleep, then i would go to sleep and rest as much as i could while he slept. Don't worry about what ur house looks like, thats not important!

I found when my baby really cried alot i would swaldle him and keep him snug, that would really calm him down and he would fall asleep in his moses basket

What r u health vistors like? I know mine where rubbish!

All the best with seeing the ped'tion at Holly House.

Chin up Nikki, he will grow out of it, it just takes time....unfor'tely there is not miricle cure, the meds our babys are on only make it comfortable for them, it does not take the 'illness' away.

TC

Nicki.xx

Permalink Reply by Nicki on December 31, 2007 at 19:29

P.S. Nikki,

As for eatting my husband used to make me sandwiches/finger foods etc nite b4 he went to walk, that way i didn't have to worry about food and could eat while holdi ng my baby! As for shower i would put him in a bouncer and have him in the bathroom with me, my son loved it and i think it relaxed him (hot steama nd the sound of water)

Permalink Reply by Michelle on January 1, 2008 at 20:34

Hi Nikki

Hope things have been better today. Like the others say it is all about good days and bad days but i know it is so hard. We are struggling big time with sleep at the moment. She wakes all through the night in such discomfort. I can only put it down to the reflux and have tried everything and nothing seems to work so have resigned myself to the fact that we are just going to have to ride it out :(. I take a shower with her in bouncy chair too and she seems to like it. Also, just find that have her in the baby carrier facing outwards is good as gives me some free hands so that I can play with my son.

Would love to know where you get losec liquid from as my doctor told me it wasn't available? I had a feeling it was because it was more expensive. Would love to know about this as would make life easier!

Hang in there it will get better.

Permalink Reply by nikki r on January 1, 2008 at 22:56

hello guys,
well happy new year!! Harrison wasn't that bad new years eve as we braved a family party, we have found a new wrap blanket for him, its the miricle blanket from mothercare it was £14.99 and i saw it and bought it!! Harrison loves it bless him.....he had it on all evening at the party. Slept in it, and fed in it.

Nicki we have appt at holly house with the Dr, Tues at 1.30. I spoke to her on the ph yesterday and she was soooo lovely and understanding. Pls god she gonna help us.

Michelle, i just told my g.p that it was imposible to try and give my 7 wk old son a melted down tablet through a syringe ect......
So i told him i know the med comes in a liquid form and yes it cost £175 to order in and make, so the pharmacy said, but hey you should be able to get it.
....just demand it, i did!!!! :)
Try that blanket for sleep, Harrison slept v well in his last night.!!!

Nikki
xxxx

Permalink Reply by Michelle on January 15, 2008 at 21:23

Hi, not sure if the jabs have already taken place, I can't see when this was posted. I hate to say it but Lauren was awful with the first set of drugs, but was OK with the second set last week. I don't think you can tell how they will react so best to give calpol as advised and fingers crossed it will be OK. Lauren didn't feed for 12 hours after them and slept for most of that time. I hope it goes OK (went OK if it has already happened!).

PS - never tried it but supposed to help to feed them whilst having injection as they find it less traumatic?

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