LittleRefluxers

i had my daughter in oct 2008 she was always unsettled an as the weeks progressed she was always uncomfortable and would scream for hours we were fobbed with the its colic rubbish,at ten weeks she started getting really bad chests and cos it was winter it was put down to bugs this was the start of her going really downhill at that piont she weighed 9lbs 4ozs  was taking around 4ozs of milk over the next 8 weeks i went the gp's every week with her chest she was given nurmeous antibiotics an a refeal to the peads(with a waiting list of 6 wks) she had started only taking 10 to 11ozs of milk in 24hrs and one feed would blend into another so i started taking her to the health clinic to get her weighed every week along with the gp visits i constantly informed them of the feeding issues and about the fact she vomited alot an was told feed her more often ??? its colic blah blah by 18wks a respriatory nurse was sent to our house regarding her chest and she admitted Aaliyah immediatley and we found out she had been suffering with reflux vomiting and slient reflux her bad chest was because she was continually aspirating onto her lungs which was causing puemonia the antibiotics were treating it but cos the reflux wasnt treated she just re aspirated again she had such low oxygen they nearly had to resusitate her she spent 5 days on oxygen and had to have steriods they also started her on radnitidine and domperidone she only weighed at this piont 8lbs 13ozs it was like having a newborn at nearly 5 months she also had a strawberry birthmark which broke down because of her ill health and an umblical hernia she was a mess and we thought we were going to lose her we couldnt see a furture with her i was so low i cryed every single day i wouldnt buy clothes for her just what i needed at that time i was at the lowest piont in my life i was so down. We also put her on sma lactose free milk and a dietician went on to prescribe it for us once she came home after a week she started improving with the reflux treated an the puemonia gone but she still threw up we had to give her steriods (her lungs were so damaged) everyday and physio to clear mucus from her lungs an throat a few months later i requested her be switched to losec mups and i started weaning her this was a turning piont she continually got better from 8 months and at her first birthday she was up walking weighing a healthier 17lbs 8 ozs she still could have bad days but they got less and less now at 2 yrs 9months she has been off all meds including steriods since this xmas she is back eating dairy products shes in excellent health she talks none stop and is my most mischiveious child she is fully potty trained day and night shes still slighty small in 18 to 24 month clothes but she has  no more reflux issues at all i thought we would never get out of the nightmare but we did and you will too iam proof it gets better good luck be posistive the end will come believe me i was you 2yrs ago .xxx p.s we used a sleeping wedge and had a jumperoo toy to put her in in the day to keep her as upright as poss when awake it also tires them  lol it gave me my hands free to get on with jobs and spend time with my other 2 children without a baby constantly in my arms .xxx

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Hi there,

 

Sounds like you went through the mill but it is so good to hear a great ending!

How did you get her off her meds? was it gradually or did you just stop them? x

gradually cutting down bit by bit.xx
Thank you for sharing your story, I wish more people would do this. I feel like I'm on the edge of a breakdown with my 4 month old and his silent reflux. I'd never even heard of it before I had him. It's constantly one step forward, 3 steps back. I feel so sorry for him everyday - I'm so happy for you xx
So happy to read this!! Ur poor little one but mainly poor u coz ur little monkey won't remember it!! It is so great to hear that it will get better I'm a 5 months and days seem to go on and on!! But reading ur story gave me sum hope thank u!!
Thanks so much for sharing this Kelly! So wonderful that you're so positive an encouraging after the awful time you've been through. I'm so glad Aaliyah (lovely name!) is well again now - and am in complete admiration of you coping with it all. xx
What a nightmare and how great that it's all turned out so well. Thanks for sharing. X
Thanks for sharing, it's so nice to hear stories like this makes me feel like there is hope! X
it was a pleasure to update on Aaliyahs progress with something posistive i didnt think we would get through the first year of her life when we did we felt like breaking out the champagne it was like a celebration it will get better trust me hope u all find this soon xx
Your message was just what I needed tonight! Thanks for sharing and for helping me to see there is a light at the end of the tunnel. So pleased all is well for you x

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