LittleRefluxers

Hi everyone, I have been on here for a while as was really busy and then away. However I been having a few problems and just wanted a bit of advice really. My LO is 20 weeks now and has reflux and milk intolerance and is on Nutrimigen and Losec Mups and after several months of her feeding beeing really difficult and her milk intake being really poor with the new formula and medication the last 6 weeks had really improved and I had even considered letting my husband feed her!! However, on sat just gone when I went to feed her she went mental and refused to take it, I then waited for her to fall asleep and she drank the lot. Next bottle she did the same so again I waited for her to sleep and she drank the lot. Since then I have continued to do this because it seems to be the only way she will drink and like I said when is just asleep she drinks it comfortably and usually the whole lot. I have questioned everything but don't know the answer as to why. Could it be teething, the medication no longer working or coincidentally I started weaning her that day, but it's only a tiny amount and don't see why it would stop her wantin to take bottle while awake but drink it all when asleep. Anyway I spoke with HV today just to see what she would say and she said that I could feed her asleep because of the risk of choking and to try her with a cup. God even if she did (which I doubt she would) take it from a cup it woudn't be anywhere near what it should be. I realise that her being asleep isn't ideal but I thought that doing it this way was better than nothing and having that stress. I got really upset during this phone call and I think this is why she called me back later to which having composed myself and spoken to a friend I put to her that lots of babies fall asleep drinking their milk and most breastfed babies always fall asleep while feeding, I even remember my 3yr old often falling asleep particularly at bedtime and also the dreamfeed which I have done with both of mine, is the same thing. a) I just don't know why there is a sudden change in her taking the bottle and b) since she said that to me I feel like poo because I fear I'm risking her choking then what would i do!!!!!!!!!!!!!!!!!!

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hi

personally i do not think there is a risk of choking, or in other words, not bigger risk than when drinking awake

do what you have to do, with a refrlux baby it is about survival

dont let hv upset you, most of them do not realise or underestimate the problem of reflux

i do not know what it is but my girl started refusing her milk again once i started weaning her. she is also on losec and neocate. she was fine before weaning once she was on losec. but once i started weaning, she got worse. got lots of crying during feeding bottle.

today, just for a test, i have not given her the food, just bottle. she was a perfect baby - never cried once during milk. she just went to bed with 8oz of milk, 8 oz!!!!!!!!! wow!

anyway, tomorrow i have a peadetrician calling me back and i am going to ask him what to do. persist with weaning even though it upsets aher and stops her from taking milk or stop weaning for a while. somebody suggested to me some babies need antihistamine. i will ask him too

good luck
I don't agree with the HV either, complete and utter rubbish. I've read in so many books there is no risk of a baby choking on milk if they are fed asleep. They also say not to bother burping a sleeping baby as they are so relaxed, they don't take any air in. there are millions of parents who give their babies a dream feed. I really do wonder why HVs are here in the first place. The only thing they prove capable of doing is weighing a baby.

As for your baby not wanting to drink milk, could it be that she had a taste of real food and would rather have that than her milk? My little man was in heaven the first time I gave him a spoonful of baby rice and wasn't very interested in his milk after that. He's never been a fan of Nutramigen anyway. He started properly drinking his milk once we changed it to the AA. I've always worried about his milk intake and now always give the rest of his bedtime milk when he's asleep (he drinks down to around 80ml until he falls asleep, he's 10 months old). It could also be that your baby is still in pain with the Nutramigen and is slowly associating milk with pain. I believe this also happened with my baby and he was instantly better on the AA. As it wasn't causing him any pain, he was quite happy to drink it.
Thanks for your replies guys it really helps to get other people's opinions esp mums who have children with reflux. The situation has been in the first couple of months the crying and screaming but eventually taking the bottle but poor intake. Then with the Nutramigen and losec mups things got better and so did her intake, so stupid me thought things were improving and we were finally on the up. But like I said sat things out of the blue changed so I really don't know if it is reflux related. Once she has just dozed off and she takes the bottle she drinks the lot (6oz, that is and her for her thats more than a miracle), she now I don't have the intake as a worry just the actually taking of the stupid bottle. I also questioned the weaning and although she is taking what I give her (grantd it is a v. small amount) I wouldn't say that she is sitting there mouth open wide so wouldn't be too convinced that she wanted more although I am hoping to gradually increase this over next couple of days and see how she gets on so that I can in the very near future drop one of the bottles during the day anway.
Do you know that health visitor also said there was a problem feeding her asleep cos of the social side of things, when I questioned what she meant she said oh thats not the important thing its the risk of her choking that more important. I thought about it afterwards and thought what a stupid thing to say, its hardley like a bunch of babies get together and go down the pub to drink their bottles of milk is it!!!!!!!!!!! Bloody women has made me question myself a billion times today
Anna, once you have spoken with your Pead could you let me know what he says?
i will (remind me and chase me up, if i forget)

i so hope he will call tomorrow, as like you, don;t know what to do
no food and happy to take milk>?
or food and battle to take milk?
I personally HV's are a waste of time and resources.

when my baby was surving on 10ozs of milk per day i was told i was 'perhaps' overdressing her and to try changing her nappy lol!

it is about survival for us. our babies don't feed normally. we struggle day-to-day and unless you have a reflux baby you just wont understand.

keep doing it as it is working. X
I agree with all of the comments re HV - I dont see any point of seeing them. the last time I saw my HV she made me cry....she didn't know anything about reflex; telling me that I'm wasting time + money seeing specialist...that I should try to wind her more with water...that she felt sorry for my baby that mummy's been force feeding her! I asked how many children she had - she said NONE! I told her off and bought a baby weight at home so that I would NEVER see her again!

I just started weaning my LO 16 weeks but she's not a fan...still trying as I'm hoping the solids will take some pressure off milk. do you give solids at every meal?

good luck!
Thanks guys, I spoke with my Pead today and he said that it could be the losec mups not working any more but before we upped the medicatio and added another one as it has only just startd to give it a week and see if anything changes before going down that road. I told him what Hv said he said ignore her. His advice was to continue trying her with a bottle awake, stop if she doesn't want it or gets upset and if thats the case then feed her asleep as I have been. Then in a weeks time let him knw how things have been. I'm happy with this advice so we shall see how it goes.
Di, so far I have just been given her one meal a day and today she had a whole 1 cube so fingers crossed she continues with that and I can then move onto another meal and eradicate a daytime bottle anyway, thats my plan but who makes plans with these babies hey!!!
Anna, I wonder if you read this are you able to say what you Pead said about your LO?
Karen, spoke to my Paed. he said to stay off solids for 7 days and then slowly reintroduce again. she may have reacted to something and this made her all upset.

once i wean her again, if she becomes all bad again, he said to call back and he will have us seen by a top local doctor who specialises in gastro
so maybe some allergic reaction, not so much reflux on it own

good luck
Di- start off with one meal.if you are a first time mum, buy or borrow guide to weaning by gina ford. it is good guide and give you some advice. i am a second time mum and i still referred to it this time. just bear in mind, som foods are acidic (like apple) and may aggrevate reflux, so better not even try. good luck
THX Anna, apple is acidic? oh no, I've been mixing it with rice per the gina ford book...crap! sorry to be so slow, is there any food I should stay away from for a reflex baby? or a place I can look it up??
Thanks Anna, its all really trial and error isn't it.

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