Have I gone a bit OTT???
I finally have an appointment with my GP to discuss Harry's reflux on Monday (final staw was him refusing to prescribe gaviscon on repeat dispense and said I have to come to the surgery every time I want more - one prescription lasts us 12 days!!!). A number of appointments have been cancelled previously due to GP cancelling or me having to cancel because he is so sick, the thought of putting him in his car seat and trying to drive alone while he vomits was too much to cope with!
So, being fed up with my GP not taking me seriously, I have prepared a 3 page word document to give him which sets out all of my reasoning as to why he has cmpi. Harry thrives and does not have diahorrea or extreme eczema so GP refuses to listen!
The document includes the following:
quotes from medical journal articles which explain the links between GER and CMPI and that the majority of cases present no additional symptoms other than GER (this article actually says it is the exception to show other symptoms in a child under 1 year of age).
A 24 hour timeline which notes every time he is sick, how bad it is (on a grade of 1-5), what he was doing at the time). By the way he was sick 42 times that day!!!
A list of the weaning foods he can and can't have.
A bit of history of steps introduced and effects.
Is this all too much? Is he even going to read it? I just am at my wits end trying to get this man to listen to me. If I ask for a referral to a gastro paed am I right in thinking that he can't refuse?
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Replies to This Discussion
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Permalink Reply by Sara Catherine Emmerton on -
Just a thought... Could you copy in the Practice Manager too? The GP is then more obliged to act.... Good luck.
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Permalink Reply by Sara Catherine Emmerton on
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Just a thought... Could you copy in the Practice Manager too? The GP is then more obliged to act.... Good luck.
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Permalink Reply by Sara Catherine Emmerton on
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Just a thought... Could you copy in the Practice Manager too? The GP is then more obliged to act.... Good luck.
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Permalink Reply by Beverley Ward on -
Go for it. He'll be happy to refer you to get you out of his surgery! :) I find paeds take me more seriously when I have bits of paper but I'm sure I'm also a bit annoying. Better to be annoying though if it gets results. Good luck. X
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Permalink Reply by Catherine Walker on
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Yes I agree , send a copy to the practice manager ! They will get involved then and will have to respond , if you don't agree with the response you can take it to your local PALS office , we have had two positive results with PALS .
I maybe wrong but I'm not sure a gp can refer to a gastro paed I think they can only refer to a general paed and it's them who can refer but I may stand corrected.
Good luck xx
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Permalink Reply by lorna smithers on
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the gp can refer to a gastro but prefer to refer to a general paed and let them make a decision. May be an idea to find out who is a good gastro paed in your area and take the name and tell them who you want to be referred to x
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Permalink Reply by Emma Louise Evans on -
It is terrible that this is the kind of fight we have our hands with reflux babies. As if we haven't got enough going on without the world to fight on top of it!! It makes me so angry. We've been through hell with the babies...the worst of it has been fighting for medical help. After 6.5mths we've decided to go privately and wish to god we'd done it at the beginning. I hope you get the help you need and a referral to a paed will definately be a good move. Refuse to leave his office until he's read it and I agree with the girls suggesting you involve the practice manager.
Good luck with it!
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Permalink Reply by laura taylor on -
Thanks ladies. I will copy the practice manager and see what response that gets if GP does not give me what I want!
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Permalink Reply by Sara B on
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If you are going in for a battle i would also ask for a refferal to a peadiatric allergist! If he is reacting to foods, it sort of suggests he may be a bit allergic, which gastro peads arent always switched on to, even though they should be. Xx
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Permalink Reply by Claire Allison on -
go for it, in my experience the more info you have with you to back you up the more seriously they will take it and definitely send to practice manager too. Unfortunately GP's are what their namesake says they are - general practitioners, the usually dont know anything much about infant feeding problems as most have very little experience of working with children other than the bare basics of what their medical training required of them. That is unless they have a special interest or have worked in paediatrics before becoming a GP. Even some paediatricians will not know a lot of the background regarding intolerances and reflux unless they have had an interest in gastroenterology. What area are you in? maybe the girls on here could help recommend a local gastro paed so you can ask for a direct referral. They cant refuse you, you just need to keep standing up for your rights. xx
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Permalink Reply by laura taylor on
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I am in Warwickshire, so the Midlands. I have looked at the hospital directory for our local (Coventry) and there is a paediatrician who specialises in allergies so I've got his name to take with me. But obviously don't know if he's any good so any recommendations would be gratefully received!
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Permalink Reply by Joanne carlyon on
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Hi just read your post we are on Warwickshire too. We see a gastric paediatrician called professor murch is is very knowledgable. Lo is 20 months and we are just about to push for investigations at our next appointment at university hospitals. We have neocate and all usual drugs domperidone, ranitidine and omeprazole along with drugs for micro nutrients which may not have been absorbed from gut due to inflammation. Blood tests again text week. Would I recommend ? Yes. Always want more done for our babies but we have no complaints. Will bring appointments forward if needed too. Hope this helps. Jo
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