food intolerances again !

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Permalink Reply by Harriet on August 1, 2011 at 20:57

hmm this article is making more and more sense to me the more i read it. Im starting to go through Billys medicines so far Ketotifen contains e216 and 218 both named in the article as causing problems...

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Permalink Reply by Beverley on August 1, 2011 at 22:36

Douglas has horrible reactions to all medicines, Sarah, except for Losec and cetirizine in tablet form. Anything in solution makes him really poorly. Of course that's only my view. "Mum seems to think he might be having a little gut reaction to calpol" said the registrar in the allergy clinic. GRRR. By the way, been trying banana and Douglas is absolutely dripping with sweat. Someone mentioned autonomic dysfunction. Have you heard of this? He's been a bit difficult to get to sleep and wriggling and writhing a bit after it today. Find it so hard to decide whether these kind of reactions are enough reason to stop each food but something is obviously going awry each time I try anything other than squash and potato. I know we're lucky he can eat those. Sometimes feel like just stopping at that and enjoying his babyhood because this food trialling is really stressing me out. x

 

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Permalink Reply by Harriet on August 1, 2011 at 22:47

I know what you mean. Sometimes i know its easier not having to food trial, however i still feel Billy isnt 100 stable on his modular feed and he apparently should be. Hopefully new dieticians are going to try and tweak it. Interesting about the sweating.... we gave into fighting him last night (its a constant battle to keep food away from him) and he had a small piece of beetroot and cucmber last night and woke at 430 this am totally manic and wired and has sweated buckets all day (it has been hot too though) but he def sweats when reacting... ive never mentioned it and have always concentrated on getting his pain reduced. oh no something else to google....

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Permalink Reply by Beverley on August 1, 2011 at 22:55

Must be very hard for you. Dougs has just started pointing at our plates and crying :( Don't know whether we should start eating when he's not around as he can't understand why he can't have what we've got. Eating as a family has always been part of our philosophy and has been great for Edie who's a fab eater but not sure it's going to work with Douglas. Hope they can tweak Billy's feed. The leg thing is interesting. Have noticed that since you mentioned it. X

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Permalink Reply by jo on August 2, 2011 at 7:37

hi,i feel for you both.i havent had the energy to trial anything new since the playdough incident .im increasing the ppi first for a while then willstart again .we are still on 6 foods and not totally righte on that but loads better than before

jo also goes cold and sweaty when he is reacting to something but for us its not alone(always comes followed  being manic,hyper then by lots of screaming)so hard to know what to do bev 

sarah,things must be so hard for you.i struggle keeping food away from jo and now sadly we dont eat in front of him as it was becoming too traumatic.we have always loved our family meals and eating out together but it feels too unfair .i really wish things were better for you.what is the leg thing by the way?

sarahx

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Permalink Reply by Sarah on August 2, 2011 at 7:58

I can relate to that, Sarah... We're still stuck on a very very limited diet because the consequences of 'getting it wrong' are so awful for Lizzie and for all of us..  We're now on 8 different things, which I'm chuffed about. Braving a little bit of chicken again today, I think...

The only thing I can suggest is having lots of finger food things available when you're having dinner as a family - I don't think Lizzie knows that she isn't having quite the same as the rest of us (I know this is more difficult for Billy - I don't think he'll be fooled so easily anymore) and various things to play with. That way our MFPI babies can still sit with us and be a part of it all.

S xxx

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Permalink Reply by Beverley on August 2, 2011 at 9:47

The leg thing is just about foods causing leg pain. It's hard to tell with little ones but Douglas does rub his legs together when he's trying to get to sleep so it could be pain.

 

The banana all came out this morning in the most violent diarrhoea he's ever had so we'll be stopping that I think :(

 

Eating together is really difficult. I'm not even sure sometimes with D whether he can manage finger foods as they seem to make him constipated. He's only 10 months but he's definitely twigged now and it's only going to get worse. I was hoping i'd soon be able to make him something that looked like everyone else's dinner but there's not much i can do just with squash and potato.

 

x

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Permalink Reply by jo on August 2, 2011 at 16:08

oh bev,you poor thing,such a shame about the banana.IS HE BACK ON THE CETIRIZINE NOW?not sure what to suggest next.

sarah.what foods can lizzie eat?

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Permalink Reply by Madeleine on September 18, 2011 at 20:05

Wasn't quite sure where to post this but found this website (from US and still some pages under construction) and there's this page about introducing foods for babies with multiple food protein intolerances. Now I just wish I could get my LR to try some!

http://www.refluxrebels.com/MSPI/FeedingWithMSPI.html

You'll need to scroll down page a bit.

 

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Permalink Reply by Tracey Louise Howes on November 15, 2011 at 21:13

Bumping this to the top of posts - some very useful reading here!

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Permalink Reply by Beverley on April 11, 2012 at 22:46

Bumping for Beth

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