food intolerances again !

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Permalink Reply by jo on July 22, 2011 at 23:34

if it is too long skip to the multiple protein intolerance bit

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Permalink Reply by Helen Milne on July 23, 2011 at 7:44

That is really interesting.  I recommend you actually put the time aside and read it properly as the bit explaining the actual differences between allergies and intolerances was very useful.  A lot of it I already knew (especially as a Biology teacher) but there were a few really good bits.  I also liked how to introduce new foods.

 

Thanks,

H xx

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Permalink Reply by Sarah on July 23, 2011 at 8:02

This is an excellent article and echoes what we have been told by the gastro-paeds almost exactly. I'd definitely recommend a good read of it - especially to the newbies just starting out on this journey!  Thanks for sharing!

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Permalink Reply by Jenny Rawling on July 23, 2011 at 8:25

What a great article! Is there a way of making the post "sticky" so this is always around for newbies to read? Jen xx

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Permalink Reply by Beverley on July 23, 2011 at 9:25

Well found, Sarah! That's the clearest thing I've ever read. I shall retrieve my steamer forthwith. Not sure about steamed potatoes. Mind you he's fine with potatoes so I don't need to worry about that. Thanks for this.x

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Permalink Reply by Beverley on July 23, 2011 at 17:40

Any idea where it came from Jo?

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Permalink Reply by Clare Jenkins on July 23, 2011 at 18:06

Just read the article, I think it's the most informative and easy to understand article I've read. I went to the home page and read the reflux section which is also really helpful. Although I'm hopefully getting to the end of the journey of hell. It would be really helpful for mums at the beginning.
Thanks for finding it x

Ps were you googling 'parents of distressed children'

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Permalink Reply by jo on July 23, 2011 at 18:32

hi .i had my dietician appointment and she has suggested to me the possibility of salicylate intolerance.i just googled this and found this aussie website.i have found that the information from australia and nz regarding reflux etc seems to be much better than in uk.i dont know why but they seem better informed about it over there and they really seem to take it seriously...eg their guidelines are that every babe with reflux is given a trial of hypoallergenic formula/dairy free bf as first line before medication etc..

anyway i wish i had all this info when i started weaning.i would do things so differently.

there is really good info in the site re salicylate intolerance which they have a theory ( and they do keep saying it is ONLY a theory) can happen if a babe is continually exposed to a protein they are allergic to some immune systems can go into overdrive then they have problems with chemicals which are in other seemingly harmless fruit and veg,colourings ,preservatives etc

 the dietician said.

jos worst reactions are with strawberries,grapes,raisins,tomatoes,....all very high in salicylate

his best foods are banana,pear,potato,squash,..very low salicylates

reacted to preservative in eye drops and calpol.(lots of medicines presevatives have salicylate so cheking these)

it may all be a coincidence but any little lead in this mystery is worth pursuing!

really hope it has helped.it  helped me understand things a bit more..

sarahx

 

 

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Permalink Reply by jo on July 23, 2011 at 18:59

sorry girls,that was a really waffly answer.yes the website is DISA distressed infants support assosn.

hope it helps.im sleep deprived again!!

clare,really grateful you still come here to help us even though your own journey is hopefully coming to an end.keep us updated on harry !

love sarahx

 

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Permalink Reply by Clare Jenkins on July 23, 2011 at 19:25

Sarah :) I'm addicted to this site, lol. Really helped me feel I wasn't struggling alone when h was little. Didn't think id still be here at 28 mths though :(
How's Jo doing? How are you? X

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Permalink Reply by jo on July 23, 2011 at 20:21

he is still really struggling,poor love.had a really bad 2 weeks with him but weirdly seems to be more reflux symptoms at the moment .vomiting again:(   3 hours of screaming agony for him last night.quite aggitated in the day too.just doesnt seem to be getting any better at all and 16months now.

i feel like i cant rest till ive sorted out what is wrong with him.i think i have a new wrinkle appearing every day!!and as he is 16 months now thats an awful lot of wrinkles!!

sarahx

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Permalink Reply by Tracy Nash on July 23, 2011 at 20:36

That's a really interesting website and is now making me re think giving the ranitidine that I pushed for! I've given it for past 2 days and though he seemed to increase his milk intake slightly yesterday and therefore slept lOnger last night he seems a bit more unsettled than the few days before. I'm now wondering if the neocate had started working 4 weeks down the line as his reflux had already seemed better.

think I will stop the meeds and see what haPpens.  Though we have jabs Tuesday so that will turn everything upside down. It's so hard knowing what to do for the best. .

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