Confused! Weaning problems and reactions...
Hi all
The twins are now 6mths old and we have been trying to wean them since before christmas but have had to stop several times due to Ché showing possible reactions. Leo is taking really well to it all and is a normal baby since being on Neocate. He was suffering with reflux but his main problems was colitis and all that has cleared up now.
Each time we've tried weaning, Ché has become very upset, unsettled, back to his usual inconsolable screaming, night wakings, reflux, mucous nappies etc. Each time we've stopped, he's returned to being pretty happy within a few days. This time, we stopped for 10days and by day 3-4 he was happy, smiling, reflux/pain free and a totally normal baby. He was still waking at night but less often and wasn't screaming in pain. After 10 days, we started giving him Neocate Spoon. He's been having this, plus his Neocate milk and double dose of Omeprazole (went from 10mg to 20mg) since Tuesday and almost as soon as we started this he's been upset and unsettled again. My partner said on Tuesday that as soon as I gave him something he started up again. But I told her there was nothing in Neocate Spoon that could cause a reaction and I put it down to teething. Yes, he's been teething this week but there is a difference in the teething episodes and the inconsolable screaming episodes (he doesn't ram his fists in his mouth or do the other teething things when he's screaming). Am I wrong about the Neocate Spoon? Can it upset some babies? A reaction or just a digestive problems maybe??! Why would he suddenly start going downhill again? The only other thing is that I gave him 2 doses of Calpol yesterday...one in the morning and again in the afternoon. Things have been worse overnight but it doesn't explain the upset before the Calpol.
Last night he was waking up screaming, frantically rubbing his face, eyes and nose. Seemed to be really irritated. He was also having tummy pains and groaning, fidgeting and restless in pain, wouldn't settle. This happens several times last night and at 5am he did a massive explosive nappy that was full of mucous and all up his back. I thought that would be it and that whatever has upset him would be out of his system. He went back to sleep at 5:30am but an hour later he was rubbing his face in his sleep and was really irritated again. He was in and out of sleep getting agitated and in the end he was wide awake and upset so we brought him down. He's been out of sorts all morning and after fighting to get him to sleep (he was tired but wouldn't settle) he woke up with red, puffy eyes, dry scaly skin between his eyebrows and a small rash on the side of his face. Now that tells me there's a reaction to something but all he's had is Neocate milk and Neocate Spoon. So could the Calpol be responsible for this?
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Replies to This Discussion
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Permalink Reply by Emma Louise Evans on -
Beverley, thank you for telling me about your story. I was in tears reading it as I could've written a lot of it myself. We've never had any apnea thankfully, and I don't want to jump the gun about a diagnosis, but so much of it rang true. I am pinning all my hopes on the appointment on Monday and I am so anxious about it not going to plan. My aim for the appt is to get them to agree to tests. I just don't know how to go about it. Do I tell them I want to rule out things like EGID or do I not mention it at all (in case they think I'm going in there self diagnosing?)! I'm worried sick about the appt coz of the way things have gone in the past, but I can't be let down again and need to go in there with a plan. I have no idea what this gastric paed is like but I know he wouldn't prioritise the appt until we kicked up a fuss and got our general paed to speak to him.
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Permalink Reply by Beverley on -
I don't know really what the best approach is. I think being well-informed can probably rile some paeds but maybe also makes them take you more seriously. I guess it depends on them and you don't know. Maybe describe the symptoms as clearly as possible and if they seem to be fobbing you off mention EGID. If they don't know what you're on about at that point you know you need to see someone else! Maybe try writing stuff down. I find that helps. I've handed spreadsheets at my gastro with dates and reactions etc and i write lists of questions and hand them over. After the egid diagnosis I honestly had typed questions that filled 2 sides of A4 paper and my gastro went through them and answered them one by one. It helps me to write things down because until recently (now that i'm taken seriously) i had a bad habit of bursting into tears as soon as i started to speak about it all which reallt doesn't help matters.I really hope it's a good appointment for you. Just tried to add you as a friend on Facebook so I can join you on Reflux Room but no idea if I've got the right person. X
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Permalink Reply by Emma Louise Evans on
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Yes, my general paed doesn't like that fact that we've done so much research and thinks we're over reacting because of it. I also write loads of notes and this week I have been keeping a diary of feeds, sleep, reactions, moods day and night. It's been an extra task but will hopefully be worth it. I always try to be empowered before going to appts but so far I've gone in and sat there without asserting myself. This one has got to be different on Monday coz we can't go on wondering and driving ourselves around the bend with it all. On a good note...Ché has been happy today...so it's more likely to be the calpol that he reacted to as we continued to give him Neocate Spoon. We will give it a few more days before deciding on that one though.
I can't believe what you have been through and are still going through. It really saddens me that so many of us have to fight and justify ourselves to be taken seriously, by everyone around us not just the medics. I hope that things improve quickly for Douglas and that he can tolerate more and more foods as time goes on.
Oh, I replied to the other thread and put a link to my profile!
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