Can Anyone Help Saw Dr Shah at GOSH today?

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Permalink Reply by Gillian D on January 24, 2012 at 21:10

I think the n one is Nalcrom. 

No personal experience of those meds but I'm sure one of the other girls will be along to help just directly. 
x

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Permalink Reply by Harriet on January 24, 2012 at 21:14

Hi Anita 
I only have experience of nalcrom which I'm guessing he has prescribed . My only tip is it takes about 4 weeks to get full effect from it. Incidentally were you in Starbucks after your appt? X

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Permalink Reply by jane on January 24, 2012 at 21:50

hi

 

my son had nalcrom and it is for food allergies and also he was prescribed azithromycin for his intercurrent illnesses as he was catchin toomany bugs and was ill all the time. these are the two meds i know of.

 

hope this is helpful :)

 

love

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Permalink Reply by Beverley on January 24, 2012 at 22:43

My LO is on Nalcrom. It's a mast cell stabiliser which is supposed to stop some allergic reactions. He will have said this but make sure you tip it out of the capsule into hot water. Afraid I can't tell you whether it's helped my LO but I know some people swear by it.

Azithromycin is to help fight bugs and also apparently helps to heal the gut to some extent. We haven't tried it yet.

Montelukast I think is most commonly given for respiratory issues. I know someone whose LO has been really helped by it. Again, not tried it yet but been mentioned a few times by consultants for my LO.

I would stagger there introduction in case of reactions and do you can tell which one is helping.

Glad you had a positive appt.

X

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Permalink Reply by Laura McKechnie on January 25, 2012 at 9:20

We've tried Montelukast to try and help reduce some of the symptoms related to allergies. 

It worked in that Seb stopped rubbing his nose constantly and certainly reduced the nighttime coughing and his breathing wasn't as laboured.  However after about 3 weeks he seemed to be sleeping really restlessly, waking up screaming but not the reflux type scream.  We put it down to nightmares in the end (as this is one of the side effects) so stopped it. 

I do know of others though who say it is amazing, so very much child dependent.

I agree with Bev - don't introduce all at once or else it'll be difficult to tell what is helping and what may be causing further issues.

Good Luck.x

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Permalink Reply by Anita Stewart on January 25, 2012 at 10:59

Thanks for all your relies.....Dr Shah suggested we introduce them 2 weeks apart, hoping to pick up the prescription tomorrow so can start the Nalcron tomorrow xxx

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Permalink Reply by Teresa on January 26, 2012 at 22:51

Cole was put on Montelukast at 10month old for respiratory problems. Prior to starting it he had a permanent wheeze sounded like an old man who'd just run a marathon. And had been having at least one hospital admission a month with breathing difficulties. Within days the change in him was amazing and we've never looked back.

Like Laura says everyone reacts differently to things and for us it is the best thing the dr's have ever done for him. Not had any problems with it at all side effects wise.

I will just add that he has it in the powdered sachet form. They also do a chewable tablet and he did react to this hives etc which i think was the cherry flavouring.

xx

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