8 months with Silent Reflux & Getting Worse Again - Desperate Please Help is it Reflux or Wind?
Oh thank God to discover other people going through the same when your HV and Doc make you feel like you are paranoid and you have a naughty baby!!
Oh I hope someone can help I am desperate and sitting here crying my eyes out feeling like the worst Mum in the world. I hate my daughter at times and have had real problems bonding with her - I know it's down to sleep deprivation but I'm getting to the stage I'm frightened I'll snap. She's so lovely too. Next minute I'm wracked with guilt and in tears. I want to love her so much - she's our last baby and it's not supposed to be like this is it?!
My son had reflux - vomit everywhere but easily treated with Gaviscon and he was never in pain like Emily.
Hers started at 6 weeks really. At 12 weeks I gave up breast feeding and went on to Aptamil to see if it would help and I could judge what she was eating plus give me a break. Doc diagnosed colic at 8 weeks and tried everything. By 12 weeks she was very unhappy and in desperate pain every time I put her down but no it was "just colic" ( no vomiting) By Christmas and 5 months old, partner was slepping on the couch and Emily only sleeping on my chest in bed whilst I was sat upright for max 1 hour at a time.
I looked on the internet desperate and then told my GP i thought it wsa silent reflux. Was given Gaviscon, no effect so then Caroble, no effect and told to wait 10 weeks for a referral to hospital. After 1 really terrible weekend went straight to Yorkhill A & E and was told yes it did sound like reflux and given Ranitidine. Armed with tips from the internet (keeping upright, wedge pillow for sleeping) and medicine things improved massively and we got a few nights sleep at last. She massively improved during the day and was really quite content.
Problem is she has now started sitting upright, bums along the floor bouncing up and down, tries to crawl landing on tummy, rolling on her back and the reflux has really flared up againg at night time only. Some nights its back to every 40 mins - last night a fab 5 hours but most every hour or two. She still sleeps an hour in the morning and maybe two in the afternoon ok - so is my GP right?
My Gp says it's now just habit and nothing wrong with her (as does mother in law!) My question is i don't know if it's reflux causing the probs or wind - how do I know? She wakes up screaming I settle her then a few minutes later starts writhing around in my arms and screams again, sometimes she farts as well (sorry but best word to describe so that everyone knows what I mean!) sometimes she doesn't, sometimes she just wiggles then goes back to sleep again but it's always the same. I know when her reflux is really bad as she throws herslf back madly and her breath is bad but is her problem wind or reflux - where does one start and another stop? Surely if it was habit she'd be happy sleepping on me / with me but she's not and wakes frequently.
Also surely I can't stop her development by making her stay still and "tied" to a wedge cushion! Any advice here form mum's with older babies as most is for younger babies.
She's fully weaned, loves food and her milk and does not have a full sign so have to regulate her - too much defo caused problems. Any tips here too - I have atoddler of 2.5, a big dog and a partner that works shifts so can't dedicate every minute of the day to Emily - her brother has already missed out on so much from me and I go back to work in 3 weeks so feeding every 30 mins isn't a viable option.
ANY advice would be amazing - I'm so desperate! My Mum spends 6 months away in South Africa each year and is home soon but apart from that I have little support - kind in-laws and and 2 sister-in-laws but they all have children who sleep perfectly hence |'m made to feel more of a failure. My partner is great and very supportive but it's hard for him too. He tries to settle her but to no avail. Iv'e now not had a nights sleep for 8 months.
Please help before the swigging wine from the bottle at 11am becomes a permanent habit!! Thank you. Oh ......and could at least one person lie and say it will all be better soon!!
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Replies to This Discussion
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Permalink Reply by Milla on -
I feel for you and you should pat your self on the back for doing so well!
If you think your baby is in pain, then would recommend keep going back to GP and being persistant. We are on omoprazole which apparently is very expensive so gps only prescribe this med as final step but M greatly improved with this med and whilst the taste is aweful, and had to force feed M with syringe, you can give at anytime and not 30 mins before feed. Also M has cranial osteopathy which has helped significantly.
I hope this helps and well done again as think you are doing brilliantly!
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Permalink Reply by Kerrie Fitzsimons on -
Thanks folks - have put an order in for the book, had another good night last night but didn't do anything different so who knows!! Will be nice to get some good pointers on what is right and wrong. Even my HV admitted he knew nothing about reflux so I advised him to look at the site......!! Think he was going to as well so good for him. maybe more heatlth professionals should see what we are all going through!!
Kerrie
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Permalink Reply by Lara Hamilton on -
Hi Kerrie
This is gonna sound really strange, but has anyone ever looked at your wee one's tonsils? That might sound mental, but only time I've seen older babies with bad breath was my son who was plagued with bad tonsils until they were removed
Larax
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Permalink Reply by Susan Crawford on
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Hi Kerrie, I am just new to this forum today and just want to sympathise with you. I am going through exactly the same thing with my little boy who is 9 months old. I also have a 3 year old daughter so I know how difficult it is, and I too haven't had a nights sleep for what seems like years !!!
My little boy was given omprazole this week but his wind now seems worse at night and he too is up every few hours and the wee soul is absolutely shattered. I don't know where it's going to end. I don't know what the answer is but I just wanted to let you know you are not alone. It's very difficult. The pediatrician I saw said most babies do grow out of reflux between 9 and 18 months so I am holding on to that, it will pass hon, it won't last forever, you just need to get through it x
All I can say is thank god for coffee - I don't know what I would do without it !!!! xxx
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Permalink Reply by Kerrie Fitzsimons on
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thanks Susan - have had 2 full nights sleep this week (6.30 - 5 ish) which is fab compared to up every 40 minutes 2 weeks agao but think it's gonna takemore that that to feel recovered - have just been signed off work (was due back in 2 weeks) indefinately with exhaustion. At least that's one worry off my mind - can concentrate getting my little one better and trying to get a bond with her which both my partner and I have failed to do so far it's been so hard and LOOOOONG.
Even better will see my Mum in 2 weeks (been away for 6 months!) and can just hand wee Em over and get a proper rest with confidence and no guilt attached.
Don't know if it was the increased Ranitidine that helped or that I cut right back on 5pm dinner (now only 2 ice cube size portion of either mash potato or porridge with a little Organix snack) then a 5oz bottle at 6pm before bed at 7 and no feed during the night but her wind has reduced AMAZINGLY.Might be worth a try when your little one gets better - you never really know what has made things better but hey ho worked a bit for us (still a long way to go and a long wait for an appointment!)
Good luck - hope things get better soon,
Kerrie x
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Permalink Reply by polly finn on
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Hi Girls
I have every sympathy with you all. I have a 8 month old daughter with silent reflux. She is on domeridone and omeprazole. She was previously on rantidine which worked brilliantly for a month then gradually it came back and we had to keep uping the dose. This is a common problem with rantidine and is called tachyphylaxis which is where the body gets used to the drug and the dose has to be increased. The ompeprazole has made a massive improvement but she is now on a massive dose and we have just increased, it wrries me that we are going to reach the max and have no way of getting tings better when she has another flare up. Im not sure why things get worse ?? teeth. I thought things would be starting to improve by now but are getting worse, ive also spent all day crying and feeling like life is a constant battle with her. I wish I could enjoy her before I go back to work.
Im a nusre in A&E and my husband is a Dr ( not a paediatric doctor annoyingly) and I can only advise that all childrens hospitals should have a rapid access clinic a couple of times a week nearly always. You should only have to wait a max of a week to attend one. Getting to see a Consultant is another matter and we ended up travelling to London and paying to see a specialist as I felt we couldnt wait. He was fanatstic and is a leading expert in reflux, his name is Dr Mike Thomson , he has a web site.
Do any of your babies refuse theor bottles? It takes me up to 1 hour to give her bottles, I give 7 oz at 07.00 then I offer 7 at 15.00 and she drink beween 2 and 5 and the about 4-6 oz before bed. My HV said I could drop the 15.00 as long as she drinks the other 2 and gets plenty of cheese, yogurt and milk on cereal, what do you guys do?
Good luck to you all
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